Pr. Guillaume JONDEAU
Cardiologist
Communication
Members
AP-HP Hôpital Bichat – Claude-Bernard, Paris
HTAD European Reference Center, Reference center for Marfan syndrome, related diseases and rare aortic diseases
Treasure UDECHUKWU
VASCERN Communication and Patient Support Officer
Essen University Hospital, Essen
HHT European Reference Center, West German Morbus Osler Center
Dr. Freya DROEGE
ENT Physician
St. Antonius Hospital, Nieuwegein
HHT European Reference Center, Rendu Osler Weber Expertise Center
Dr. Hans-Jurgen MAGER
Pulmunologist
Radboud University Medical Center, Nijmegen
VASCA European Reference Center, Expertise Center for Hemangiomas and Congenital Vascular Abnormalities (Hecovan)
Dr. Carine VAN DER VLEUTEN
Dermatologist
Associação Nacional de Doentes Linfáticos (andLINFA)
Manuela LOURENÇO MARQUES
ePAG PPL Co-Chair
Asociacion Española de Afectados por el Sindrome de Marfan (SIMA)
Carmen QUIRÓS PAZ
ePAG HTAD Co-Chair