Join us on July 10th at 2:30 PM CEST for a webinar launching a new global survey by Rare Barometer, an initiative of EURORDIS – Rare Diseases Europe. This survey will explore how rare diseases affect daily life.
Survey Details
- Duration: July 10 to September 8
- Languages: 25 languages
- Participants: Open to all rare disease patients and their families globally
Webinar Highlights
- Goals and content of the survey
- Importance of your participation in policy and advocacy
- Communication toolkit for sharing the survey
Register Now:
➡️ Register here!