VASCERN Registry-WG monthly virtual meeting

Following the Paris face to face meeting during the 1st annual seminar, the VASCERN Registry WG meeting #4 will take place place virtually in November.

The VASCERN Registry WG will discuss:

  • The EU common minimal dataset for Rare disease registration
  • The FAIR principle, which was presented to all by Dr. Marco ROOS during our 1st Annual Seminar

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