Strategy Meeting: Alignment of national rare diseases strategies with the EJP-RD

EJP-RD is organising an integrative research and innovation strategy meeting on the theme of alignment of national rare disease strategies with the EJP-RD. The fully online meeting will take place on July 8th, 2021 from 09:30 AM to 5 PM (CET).

This event is open for policy makers and persons involved in national, EU, and international rare diseases strategies.

The workshop is organised by one of the EJP-RD work packages and will focus on:

  • Presentation of EJP-RD advancement and analysis of national actions
  • Review of country-level best practices and challenges identified from a survey
  • Discussion of the way forward.


Online registration for the event is open until July 1st at the link here.






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