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Rare Disease Day 2019


Rare Disease Day 2019 will take place on February 28th, 2019!

The theme for this year’s event will be Bridging health and social care. Read all about the importance of this theme to the rare disease community here

Rare Disease Day takes place on the last day of February each year and aims to raise awareness for rare diseases amongst the general public, healthcare professionals and decision-makers in order to address the needs of those living with rare diseases.

The VASCERN Coordination team will attend an event in Paris organised by The French Reference Networks on Rare Diseases along with the French network for rare vascular diseases (FAVA-Multi)

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