Rare Disease Day 2018 will take place on February 28th, 2018! This yearly International event aims to to raise awareness for Rare Diseases with the general public and policy-makers and everyone is encouraged to take part!
There will be numerous events all around the world, including a Rare Disease Day 2018 event in Paris, France organised by the French Rare Disease Networks. The “Rare Disease Village” will take place in Paris under the canopy of the Forum des Halles. Visitors will be able to participate in a wide variety of interactive activities including a central area dedicated to adaptive sports, rare disease quizzes with prizes, a photobooth and various workshops on different themes such as “Dare Diseases and Nutrition” and “Introduction to Rare Disease Research”. This event aims to reach out to the general public in order to raise awareness for rare diseases.
VASCERN will equally be in attendance at this event in order to inform the public about VASCERN and the European Reference Networks (ERNs) in general. We look forward to seeing you there!
Link to the event here
For a list of events near you click here
All information at https://www.rarediseaseday.org/
The official 2018 Rare Disease Day video is now available (in 24 languages)! Find it here