Marfan Foundation Spanish Language Summit 2025

The Marfan Foundation Spanish Language Summit 2025 will take place on Saturday, 25 January 2025, from 10:00 AM to 12:30 PM Eastern Time (4:00 PM to 6:30 PM CET). This virtual event, conducted entirely in Spanish, is designed to provide essential information, updates, and support to patients and families affected by Marfan syndrome, Loeys-Dietz syndrome, and Vascular Ehlers-Danlos syndrome (VEDS).

What to expect at the summit

This free virtual conference will feature presentations from leading medical experts, offering the latest insights into diagnosis, management, and advancements in care for genetic aortic and vascular conditions. Participants will also hear personal stories from individuals living with these conditions, fostering a sense of community and shared understanding.

Highlights of the agenda

The Marfan Foundation Spanish Language Summit 2025 will include:

• Welcome Address: Bert Medina, President of the Board of Directors, The Marfan Foundation
• Key Updates from Tromsø 2024: Dr. Arturo Evangelista (Hospital Universitario Valle d’Hebron, Barcelona, Spain)
• Paediatric Aortopathies Guidelines: Dr. Elena Montañés (Hospital 12 de Octubre, Madrid, Spain)
• Physical Activity Recommendations: Dr. Laura Muiño Mosquera (Ghent University Hospital, Belgium)
• Genetic Testing Advances: Dr. Juan Calderón (Centro de Genética y Genómica Clínica Alemana Universidad del Desarrollo, Chile)
• Personal Perspectives: Stories from María Noguera Abrines, Emily Rossana Herrera Canel, and Sofía de la Garza

Who should attend?

This event is ideal for:

• Patients diagnosed with Marfan syndrome, Loeys-Dietz syndrome, or VEDS
• Families and caregivers supporting those with these conditions
• Medical professionals interested in the latest guidelines and patient insights

How to join the summit

Registration is free and available on the official Marfan Foundation website. Once registered, participants will receive a Zoom link to join the event on 25 January 2025.

Register for the Marfan Foundation Spanish Language Summit 2025