Upcoming event
09
Dec
10
Dec
2nd International Conference on Clinical Research Networks 2025
The European Rare Diseases Research Alliance (ERDERA) is organising the 2nd International Conference on Clinical Research Networks (CRNs) for Rare Diseases, taking place on 9–10 December 2025 in a hybrid format. Participants can join either online or in person.
This conference is co-organised with Rare Disease International and the International Rare Diseases Research Consortium (IRDiRC). It follows the successful first edition held in 2022, which brought together leading voices in rare disease research and care.
Event details
- Date: 9–10 December 2025
- Format: Hybrid – join online or in person
- Registration: Click here
- Further information: The programme and list of speakers will be announced shortly on the ERDERA website
How Clinical Research Networks make a difference
Rare diseases affect millions of people worldwide, but because each disease is uncommon, research often struggles with small patient numbers and scattered resources. Clinical Research Networks (CRNs) help overcome this challenge by connecting:
- Expert medical centres
- Laboratories
- Patient organisations
- Researchers and industry partners
Through shared data, harmonised studies, and stronger collaboration, CRNs speed up diagnosis, improve care, and make international research possible. They also play a key role in supporting natural history studies, clinical trials, and prevention strategies.
What to expect at the conference
The 2025 edition will gather researchers, healthcare professionals, patient advocates, policymakers, and industry representatives from around the world. Key topics will include:
- Collecting and sharing real-world data to improve research outcomes
- New technologies in diagnostics and clinical research
- Lessons learned from low- and middle-income countries
- Using medical devices in trials to improve quality of life
- Building strong partnerships with patients at the centre
- Models of care and research that can work across different health systems
Why you should attend
The conference offers two days of open discussion, knowledge sharing, and collaboration. Whether you are a patient advocate, a healthcare professional, or a policymaker, this is an opportunity to learn about the role of CRNs and how they are shaping the future of rare disease research.
The event aims to create practical solutions that can be applied locally while also strengthening international collaboration.