Rare Diseases International (RDI) and the Permanent Mission of Spain to the United Nations in New York are organizing a hybrid event “Engaging the UN System and Member States to Achieve UHC for PLWRD: A Blueprint for Leaving No One Behind” on Thursday, 21 September, 2023, from 13:00 to 14:30 EST/ 19:00 to 20:30 CEST. The event is co-organized with the NGO Committee for Rare Diseases, EURORDIS-Rare Diseases Europe, and Federación Española de Enfermedades Raras (FEDER).
This event is the continuation of years-long advocacy by RDI and its partners. Since the Political Declaration on UHC in 2019, in which rare diseases are specifically mentioned, and the milestone UN Resolution on “Addressing the challenges of persons living with a rare disease and their families”, RDI has solidified the key tenets of UHC for Rare Diseases through regional consultations. By looking at the three pillars of UHC in general, namely population, services, and financial protection, and applying them to rare diseases in particular, this event will solidify the next steps in implementing UHC for Rare Diseases.
“Engaging the UN System and Member States to Achieve UHC for PLWRD: A Blueprint for Leaving No One Behind” will feature expert speakers, panellists, and an audience formed of civil society, academia, research and health institutions, government ministries, regional and international organizations, and the private sector.
This event is free. Register here.