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4th Conference on European Reference Networks: “ERNs in action”


The 4th Conference of the European Reference Networks (ERNs) entitled “ERNs in action” will take place in Brussels, Belgium from November 21-22, 2018. The objectives of this year’s conference will be to:

  • Mark that ERNs are entering the next stage of their lifecycle: the deployment phase.
  • Present the main clinical and organisational outcomes and success stories of the networks and consider the lessons learned.
  • Identify the main challenges, potential improvements and opportunities for the functioning and management of the networks and the way forward for the future of the ERN system

VASCERN members who will be at this event include: our Coordinator, Prof. Guillaume Jondeau (who will Co-lead parallel session 6), Prof. Leo Schultze Kool (VASCERN Registry WG Chair and VASCERN VASCA-WG Co-Chair), Prof. Claire Shovlin (VASCERN HHT-WG Chair), Prof. Julie De Backer (VASCERN HTAD-WG Chair), Dr Leema Robert (VASCERN MSA-WG Chair), Prof. Robert Damstra (VASCERN PPL-WG Chair, parallel session 6 speaker), Prof. Miikka Vikkula (VASCERN VASCA-WG Chair), Dr Alessandro Pini (eHealth & Training / Education WG Chair), Romain Alderweireldt (VASCERN Ethical and Legal WG Chair (interERN WG)), Juergen Grunert (VASCERN ePAG Chair) and Natascha Assies (VASCERN ePAG co-chair for PPL and parallel session 6 speaker).

VASCERN Coordination team members Marine Hurard (Project Manager) and Natasha Barr (Project Officer) will equally be in attendance.

Prof Guillaume Jondeau will co-lead the parallel session 6 entitled Patient’s representatives and Healthcare providers partnerships where Prof Robert Damstra and Natascha Assies will present An Overview of Pediatric and Primary Lymphedema, the Pill of Knowledge (PoK) that that the PPL-WG thanks to the close cooperation between patient advocates and healthcare professionals.

Read the full programme here

Find all additional information related to the conference on the European Commision’s event page here.

A link to the webstreaming of the conference will also be provided on the event page so that everyone can follow along!


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