Happening soon – May 13: Don’t miss our webinar on vEDS!
Join us on 13 May at 17:00 CEST for a free webinar from the MSA Working Group. Discover practical tools like the vEDS Do’s & Don’ts developed by doctors and patient advocates to support people living with vEDS. Live captions available in 6 languages.
ERN Coordinators applicants are going to meet in Brussels on May, 25th with the European Commission. During this meeting, the status of ERN applications, progresses and difficulties will be discussed.