Upcoming event
09
Oct
10
Oct
VASCERN Days 2025: Save the Date!
Two key meetings on Hereditary Haemorrhagic Telangiectasia (HHT) will take place in May 2025, gathering healthcare professionals, researchers, and patients/caregivers from across Europe. These meetings aim to advance clinical knowledge, share research findings, and strengthen collaboration across the HHT community.
VASCERN HHT-WG Spring Meeting – 22 May 2025
The VASCERN HHT Spring Meeting is a closed meeting for members of the HHT-WG, including healthcare professionals, and European Patient Advocacy Group (ePAG) representatives. It will take place on 22 May 2025 in Crema, Italy.
Topics will include:
- Progress on work packages and cross-border care
- Registries and clinical trials
- ERN updates and future collaborative initiatives
This internal meeting provides an important space for collaboration, reflection, and strategic planning for ongoing and upcoming HHT initiatives within VASCERN.
Based on Evidence European (BEE) Meeting – 23 May 2025
The Based on Evidence European (BEE) Meeting is a one-day, biennial educational symposium. It brings together HHT experts, clinicians, researchers, healthcare professionals and patients from across Europe. The BEE meeting was created to promote collaboration and knowledge exchange. It focuses on the latest research, evidence-based clinical practice and innovative treatment approaches in hereditary haemorrhagic telangiectasia (HHT).
This year it takes place on 23 May 2025 in Crema, Italy. The full-day programme will include presentations and expert discussions on:
- Diagnosis and genetics in HHT
- Patient perspectives
- Management of HHT symptoms affecting the nose, lungs, liver, heart, brain, and gastrointestinal system
- Special focus on pregnancy, children, anaemia, and psychological aspects
- Updates on systemic treatments and clinical approaches
- Interactive sessions and a final round-up of key messages
Presenters include experts from leading HHT centres across Europe, including Guido Manfredi, Sophie Dupuis-Girod, Urban Geisthoff, Anette Kjeldsen, Freya Droege, and many others.
For the detailed programme of the VASCERN HHT Spring Meeting and the BEE Meeting (22–23 May 2025), please download the full schedule here: HHT Spring Meeting and BEE Meeting 2025_Agenda_website_20250425
This meeting is open to healthcare professionals, researchers, patient advocates, and invited guests. It is also being reviewed for CME accreditation.