Happening soon – May 13: Don’t miss our webinar on vEDS!
Join us on 13 May at 17:00 CEST for a free webinar from the MSA Working Group. Discover practical tools like the vEDS Do’s & Don’ts developed by doctors and patient advocates to support people living with vEDS. Live captions available in 6 languages.
The 7th ERN IT Advisory Group Meeting will take place online on Tuesday March 31st, 2020. Ibrahim Donmez, our IT Helpdesk & End User Support Specialist, will be present at this event.
