Happening soon – May 13: Don’t miss our webinar on vEDS!
Join us on 13 May at 17:00 CEST for a free webinar from the MSA Working Group. Discover practical tools like the vEDS Do’s & Don’ts developed by doctors and patient advocates to support people living with vEDS. Live captions available in 6 languages.
20th Turin Meeting on Rare Diseases (ERN Rountable)
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Prof Guillaume Jondeau will present VASCERN at the 20th Turin Meeting on Rare Diseases (ERN Roundtable). The European Commission as well as 5 other ERNs will be there and make presentations!