Stay ahead with the latest research, news, and upcoming events. Your Monday must-read is here!
Welcome to the July edition of the VASCERN newsletter! Start your week with the latest VASCERN updates, new resources for lymphedema, and upcoming events. Enjoy the read!
News Highlights
Discover the Latest Innovations in Rare Diseases Treatment with this Free Online Course
Catch up on our recorded webinars to stay informed about the latest in rare vascular disease care. These webinars offer valuable insights and practical information from top experts.
Here are this month’s featured webinars:
Hereditary Hemorrhagic Telangiectasia (HHT) and Pregnancy
This webinar features leading experts in the field of Hereditary Hemorrhagic Telangiectasia (HHT) and maternal care, providing invaluable insight and the latest management strategies for pregnancy with HHT.
Pregnancy and PGD in Vascular Ehlers Danlos Syndrome
This webinar features an expert in vEDS who discusses the natural history of Vascular Ehlers-Danlos syndrome, pregnancy in vascular Ehlers-Danlos including delivery and postpartum, and provides an overview of prenatal genetic diagnosis (PGD) and pre-implantation genetic diagnosis.
This webinar is a question and answer session on genetics in primary lymphedema, explaining how genetics can affect primary lymphedema and the importance of genetic testing for patients and families.
VASCERN Pediatric and Primary Lymphedema Working Group Meeting | 15 July 2024
VASCERN Vascular Anomalies Working Group Meeting | 17 July 2024
VASCERN Neurovascular Diseases Working Group Meeting | 18 July 2024
VASCERN Heritable Thoracic Aortic Diseases Working Group Meeting | 22 July 2024
VASCERN Hereditary Hemorrhagic Telangiectasia Working Group Meeting | 26 July 2024
Upcoming European & International Events
Webinar on the Impact of Rare Diseases Survey | 10 July 2024
Join an enlightening webinar on July 10th at 2:30 PM CEST for the launch of a new global survey by Rare Barometer, an initiative of EURORDIS – Rare Diseases Europe. This survey will explore how rare diseases affect daily life.
The annual VASCERN Days 2024 will take place in Paris, France. This annual event welcomes healthcare professionals from VASCERN Healthcare Provider (HCP) Full Members and Affiliated Partner centers, patient advocates from the VASCERN ePAG (European Patient Advocacy Group), and other key stakeholders for two days of engaging discussions and knowledge exchange.
ERICA 4th General Assembly & ERN Research Conference | 11 - 13 December 2024
The ERICA 4th General Assembly & ERN Research Conference will take place from December 11th to December 13th, 2024, in Udine, Italy, and is hosted by MetabERN. The ERICA Conference offers an excellent opportunity to connect with the ERN research community, present research projects, and discuss the future of ERN-related research.
Don't miss out on the latest discussions, achievements, and updates on our social media platforms. Follow VASCERN on social media to stay engaged with our vibrant community.
VASCERN, European Reference Network for Rare Multisystemic Vascular Diseases
46 Rue Henri Huchard, 75018 Paris, France
