Get ready for the holidays with a dose of rare disease research! Check out the latest updates and developments in VASCERN.
Welcome to the November edition of the VASCERN newsletter! As we dive into this month's updates, we are excited to share valuable insights and resources related to rare multisystemic vascular diseases. Thank you for being an integral part of our community!
Featured Article
Paediatric lymphoedema: An audit of patients seen by the paediatric and primary lymphoedema group of vascular European Reference Network (VASCERN)
Primary lymphedema covers a group of rare genetic conditions that cause abnormal development or function of the lymphatic system and manifest clinically as chronic edema. Secondary lymphedema is a chronic edema caused by injury to a previously normal lymphatic system. In children, secondary lymphedema is also a rare disease. This study analyses and compares the profile of children with primary and secondary lymphedema who were treated at the several top-notch facilities in Europe and the UK that are a part of the VASCERN PPL group. .
Asociación Nacional del Síndrome de Ehlers Danlos, Hiperlaxitud y colagenopatias (ANSEDH)
ANSEDH is a patient organization in Spain that raises awareness of Ehlers-Danlos Syndrome, promotes research, engages in international cooperation, and emphasizes early diagnosis by health professionals.
Don't miss out on the latest discussions, achievements, and updates on our social media platforms. Follow VASCERN on social media to stay engaged with our vibrant community.
