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As we embrace the autumn months, there’s a lot of excitement brewing at VASCERN. From key developments in September to upcoming events like VASCERN Days, we’re thrilled to share the latest updates with you. Here’s a quick look at what’s happening! |
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Apply Now for the VASCERN Summer School 2025! |
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We are excited to announce that applications for the VASCERN Summer School 2025 are now open! This is an opportunity for medical students, residents, or post-doctoral researchers to gain knowledge and tools needed to improve care and treatment for patients with rare vascular diseases. This hybrid program offers online learning from February to May 2025 and an onsite module in Paris from September 15-20, 2025. Participants will gain practical insights, earn credits, and network with leading experts. |
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Reflecting on the Success of VASCERN Summer School 2024 |
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September was an exciting month for VASCERN as we wrapped up our successful Summer School 2024! It brought together experts, patient representatives, and students for six days of learning and collaboration in Paris. The program covered a range of rare vascular diseases, including hands-on workshops, case discussions, and patient experiences, leaving with valuable insights and new perspectives on improving care. |
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Abstract Submissions Extended for ERICA’s 4th General Assembly & ERN Research Conference! |
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Good news for researchers! The deadline for abstract submissions for ERICA’s 4th General Assembly & ERN Research Conference has been extended to October 15th, 2024. This is your chance to showcase your research to a prestigious audience and contribute to shaping the future of ERN research. Don’t miss the opportunity to present at this key event taking place from December 11-13, 2024, in Udine, Italy. |
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VASCERN Experts Receive Gagna & Van Heck Award |
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Congratulations to Professors Miikka Vikkula and Laurence Boon of VASCERN’s Vascular Anomalies Working Group, who have been awarded the Gagna & Van Heck International Prize for Incurable Diseases. Their groundbreaking research has advanced the understanding and treatment of rare vascular malformations, including their discovery of the use of sirolimus as a treatment. Their work continues to improve outcomes for patients with vascular anomalies. |
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A New Era in Rare Disease Research Begins with ERDERA! |
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ERDERA, a groundbreaking initiative supported by the EU’s Horizon Europe program, has officially launched, bringing together over 170 organizations to advance rare disease research. With a focus on collaboration, patient-centered research, and innovation, ERDERA aims to transform the rare disease landscape across Europe and beyond. |
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Raising Awareness for Aortic Dissection on September 19th |
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September 19th marks Aortic Dissection Awareness Day, a global initiative to raise awareness of this life-threatening condition. Early diagnosis and treatment are critical to saving lives, and VASCERN is proud to support this important cause. Join us in spreading the word and learn more about the resources available to patients and healthcare professionals. |
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Watch the VASCERN Webinar: Is There a Caucasian Type of Moyamoya? |
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The full replay of our recent webinar, "Is There a Caucasian Type of Moyamoya?" led by Prof. Dr. Markus Kramer, is now available on YouTube. This insightful session explores Moyamoya angiopathy, its prevalence in Caucasian populations, and the latest research findings. Key topics include clinical presentations, genetic insights, and treatment approaches. |
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New Guidelines for Managing Aortic Disease in Pediatric Marfan Syndrome Patients |
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A new consensus, developed by VASCERN's HTAD-WG and AEPC, offers essential guidance for managing aortic disease in children with Marfan syndrome. The guidelines cover key areas like imaging, medical treatment, surgical interventions, and sports participation, helping standardize care across Europe. |
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VASCERN Endorses 2024 ESC Guidelines on Peripheral Arterial and Aortic Diseases |
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The European Society of Cardiology (ESC) has released its 2024 guidelines for managing peripheral arterial and aortic diseases, endorsed by VASCERN. These comprehensive, evidence-based recommendations cover key areas such as diagnosis, treatment, and long-term follow-up, aiming to improve patient outcomes across Europe. |
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Monthly VASCERN Working Group Meetings |
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Every month, our six VASCERN rare disease working groups and the ePAG (European Patient Advocacy Group) hold their regular monthly meetings. These meetings provide a space for experts and patient advocates to collaborate on advancing care and improving patient outcomes for rare vascular diseases:
Vascular Anomalies Working Group Meeting: 16th October 2024 | 16:00 CET; Neurovascular Diseases Working Group Meeting: 17th October 2024 | 17:30 CET; Medium-Sized Arteries Working Group Meeting: 7th November 2024 | 17:00 CET |
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Register for EURORDIS Webinar on Delivering a Rare Disease Diagnosis |
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Join the 6th EURORDIS Mental Health & Wellbeing Webinar on October 23, 2024, from 2:00 pm to 3:30 pm CET. This session will explore how to deliver a rare disease diagnosis with empathy and care. Featuring experts from VASCERN and other ERNs, the webinar will provide practical advice and real-life examples on communicating difficult news. |
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VASCERN Days 2024 |
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The annual VASCERN Days 2024 will take place in Paris, France. This annual event welcomes healthcare professionals from VASCERN Healthcare Provider (HCP) Full Members and Affiliated Partner centers, patient advocates from the VASCERN ePAG (European Patient Advocacy Group), and other key stakeholders for two days of engaging discussions and knowledge exchange. |
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Upcoming European & International Events |
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ERICA 4th General Assembly & ERN Research Conference |
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The ERICA 4th General Assembly & ERN Research Conference will take place from December 11th to December 13th, 2024, in Udine, Italy, and is hosted by MetabERN. The ERICA Conference offers an excellent opportunity to connect with the ERN research community, present research projects, and discuss the future of ERN-related research. |
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2nd edition of the International Conference on Vascular Anomalies (VAC 2025) |
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Mark your calendars for the 2nd International Conference on Vascular Anomalies (VAC 2025), from February 11-14, 2025, in Berlin. Join experts, researchers, and clinicians to explore the latest advancements in vascular anomalies research and foster new treatment strategies. Abstracts are due by October 11, 2024, and early bird registration ends November 8, 2024. |
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2nd ERN ReCONNET International Congress on Rare Connective Tissue Diseases |
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Join us at the 2nd ERN ReCONNET International Congress in Prague, April 9-11, 2025, focusing on rare connective tissue diseases. The event will cover key topics like diagnosis, clinical management, and quality of care, with a patient-centered approach. Abstracts are due by November 25, 2024. Early registration ends December 18, 2024. |
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Don't miss out on the latest discussions, achievements, and updates on our social media platforms. Follow VASCERN on social media to stay engaged with our vibrant community. |
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VASCERN, European Reference Network for Rare Multisystemic Vascular Diseases
46 Rue Henri Huchard, 75018 Paris, France
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