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Welcome to the August edition of the VASCERN newsletter! Wrap up your week with the latest updates, including upcoming events. Enjoy the read! |
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Replay Available: VASCERN Webinar on Moyamoya Angiopathy with Prof. Dr. Markus Kraemer |
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New CADASIL Patient Pathway Now Online! |
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JARDIN launches its new website |
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Revision of Rare Vascular Tumors in the Orphanet Database |
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Highlights from the International Children Camp 2024 for Primary Lymphedema |
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VASCERN Vascular Anomalies Working Group Meeting | 21 August 2024 |
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VASCERN Heritable Thoracic Aortic Diseases Working Group Meeting | 26 August 2024 |
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VASCERN Hereditary Hemorrhagic Telangiectasia Working Group Meeting | 30 August 2024 |
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VASCERN Medium Sized Arteries Working Group Meeting | 05 September 2024 |
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VASCERN ePAG Meeting | 10 September 2024 |
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VASCERN Days 2024 | 24 - 25 October 2024 |
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The annual VASCERN Days 2024 will take place in Paris, France. This annual event welcomes healthcare professionals from VASCERN Healthcare Provider (HCP) Full Members and Affiliated Partner centers, patient advocates from the VASCERN ePAG (European Patient Advocacy Group), and other key stakeholders for two days of engaging discussions and knowledge exchange. |
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Upcoming European & International Events |
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Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos Syndromes Symposium in Oslo | 25 August 2024 |
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Join the Marfan Foundation in Oslo on August 25, 2024, for a one-day symposium focused on Marfan syndrome, Loeys-Dietz syndrome, and vascular Ehlers-Danlos syndrome (vEDS). Connect with top medical experts and others in the community. Registration is free but required. |
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Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos Syndromes Symposium in London | 31 August 2024 |
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Join the Marfan Foundation in London on August 31, 2024, for a one-day symposium on Marfan syndrome, Loeys-Dietz syndrome, and vascular Ehlers-Danlos syndrome (vEDS). Connect with leading experts and others in the community. Registration is free but required. |
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ERICA 4th General Assembly & ERN Research Conference | 11 - 13 December 2024 |
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The ERICA 4th General Assembly & ERN Research Conference will take place from December 11th to December 13th, 2024, in Udine, Italy, and is hosted by MetabERN. The ERICA Conference offers an excellent opportunity to connect with the ERN research community, present research projects, and discuss the future of ERN-related research. |
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2nd edition of the International Conference on Vascular Anomalies (VAC 2025) | 11 - 14 February 2025 |
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Mark your calendars for the 2nd International Conference on Vascular Anomalies (VAC 2025), from February 11-14, 2025, in Berlin. Join experts, researchers, and clinicians to explore the latest advancements in vascular anomalies research and foster new treatment strategies. Abstracts are due by October 11, 2024, and early bird registration ends November 8, 2024. |
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2nd ERN ReCONNET International Congress on Rare Connective Tissue Diseasesy | 9-11 April 2025 |
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Join us at the 2nd ERN ReCONNET International Congress in Prague, April 9-11, 2025, focusing on rare connective tissue diseases. The event will cover key topics like diagnosis, clinical management, and quality of care, with a patient-centered approach. Abstracts are due by November 25, 2024. Early registration ends December 18, 2024. |
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Don't miss out on the latest discussions, achievements, and updates on our social media platforms. Follow VASCERN on social media to stay engaged with our vibrant community. |
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Have a wondeful summer break! |
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VASCERN, European Reference Network for Rare Multisystemic Vascular Diseases
46 Rue Henri Huchard, 75018 Paris, France
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