Parliamentary Advocates for Rare Diseases

Eurordis has launched the network of Parliamentary Advocates for Rare Diseases. This network of European and national Members of Parliament will advocate in the goal of improving the lives of people living with a rare disease by encouraging cross-border EU collaboration and ensuring that rare diseases are made a fundamental…

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VASCERN is now on Facebook!

The VASCERN coordination team is very happy to announce that we now have an official Facebook page! As planned in our 1st year Action Plan (WP 10 on Communication), this Facebook page will share all of the latest news, achievements and events from our network as well as highlight the work and dedication of our…

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VASCERN YouTube Channel is launched

The  availability of conferences on YouTube via the VASCERN YouTube Channel is part of our first year action plan (Work Package 7). Our objective is to share content about: VASCERN The ERNs Scientific content on Rare vascular diseases Conferences given by VASCERN Members on our area of expertise Pills of…

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VASCERN 1st Annual Seminar, Paris, October 13-14

The VASCERN 1st annual seminar will take place in Paris on October 13-14! This event will gather 80 participants, including all our Members for the first time!   @VASCERN  Follow & tweet with us using #VASCERNdays2017 All our 31 Healthcare Providers Members will be represented by 1 or 2 representatives. 12…

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VASCERN Coordination Team is growing!

The Project coordination team based in Paris (Healthcare Provider Coordinating: Assistance Publique Hôpitaux de Paris, Hospital Bichat – Center of Reference for Marfan Syndrome and related disorders) is growing: 2 new VASCERN Coordination team members have joined Prof Guillaume Jondeau and Marine Hurard on September, 19th . The VASCERN team reinforced…

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