ERNs new videos

The European Commission has released four new video testimonials from rare diseases patients, explaining how European Reference Networks for Rare Diseases help them. More info here Watch the videos here

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VASCERN ePAG meeting in Budapest

During the EURORDIS Membership Meeting in Budapest on May 19 – 20, some of our VASCERN ePAG (European Patient Advocacy Group) representatives had the opportunity to meet, and to share with all ePAG groups challenges & achievements in engaging with new ERNs. Besides this face-to-face meeting in the framework of the EURORDIS Membership Meeting,…

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eHealth Call for ERNs

The European Commission (INEA Agency) has launched a Connecting Europe Facility (CEF) Telecom Call on eHealth for European Reference Networks on May 6th. This call for ERNs aims to facilitate the connection between members of ERNs by ensuring the adequate and efficient use of the ERN Core Services (Clinical Patient…

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Patients’ Rights in EU Cross-border Healthcare

Information on patients’ rights with regard to cross-border healthcare in the European Union: Leaflet on Patients’ Rights in Cross-Border Healthcare Video on Patients’ Rights in Cross-Border Healthcare Q&A on Patients’ Rights in Cross-Border Healthcare: List of National Contact Points in Cross-border Healthcare: Webpage in DG SANTE on the Cross-border Healthcare…

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