Start of VASCERN’s 2nd Year Activities

Since March, 1st 2018, VASCERN has started its second year of activities under the 5 Year Framework Partnership Agreement (FPA)! This second year (March 2018-February 2019) will be covered by the Specific Grant Agreement (SGA) for Year 2, currently under preparation with CHAFEA (The Consumers, Health, Agriculture and Food Executive…

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Research News: New collaborative HTAD-WG publication

A new scientific publication on arterial tortuosity syndrome has been published online (advance online publication) in Genetics of Medicine. The publication, entitled Arterial tortuosity syndrome: 40 new families and literature review, is co-authored by several VASCERN HCP representatives including Prof Julie De Backer (Chair of the HTAD-WG), Dr Sophie Dupuis-Girod…

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A look back at Rare Disease Day 2018

For Rare Disease Day 2018, the VASCERN coordination team was present at the Rare Disease Village, along with 2 other ERNs, 17 French Rare Disease Networks, 17 patient associations, The Rare Disease Expertise Platform in the South of Paris, and The French Rare Disease Alliance (Alliance Maladies Rares), in Paris…

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VASCERN 1st Year Deliverables Submitted!

VASCERN is a European Reference Network, an EU Project co-funded by the European Union 3rd Health Programme. Under the 5 year Framework Partnership Agreement (FPA) with the European Commission, VASCERN has signed a Specific Grant Agreement (SGA) for its first year of activities as an official ERN. As February is our Month…

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