VASCERN Spotlights: Dr. Michael Frank

During VASCERN Days 2019, we were lucky enough to catch up with Dr. Michael Frank, Co-Chair of the Medium-Sized Arteries Working Group (MSA WG), from Paris, France for a VASCERN Spotlights interview. Dr. Frank tells us how he became involved with VASCERN, the clinical research on vascular Ehlers-Danlos syndrome (vEDS)…

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New VASCERN Affiliated Partner from Slovenia

VASCERN is happy to welcome our second official Affiliated Partner: Univerzitetni klinični Center Ljubljana, from Ljubljana, Slovenia. This Slovenian Associated National Centre, will be represented by Dr. Tanja PLANINŠEK RUČIGAJ, a dermatologist who will bring her specialized expertise to the Pediatric and Primary Lymphedema Working Group (PPL WG). We were very happy that…

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Update on Marfan Bakoumba book translations

As presented in a previous article, Bakoumba is a Marfan children’s book, originally published by the French Marfan Association – Association MARFANS, which is now being translated into various European languages. VASCERN has been collaborating with Association MARFANS and the Marfan Europe Network in order to manage the translations of Bakoumba and…

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VASCERN Spotlights: Professor Sahar Mansour

In this edition of VASCERN Spotlights we meet Professor Sahar Mansour from London, UK, Prof Mansour is Co-Chair of the Pediatric and Primary Lymphedema (PPL) Working Group and talks to us about her interest in genetics and primary lymphedema, the challenges faced when trying to interpret genetic results in lymphedema…

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News from the Marfan Europe Network (MEN) meeting!

The Marfan Europe Network (MEN) meeting took place from September 19-22, 2019 in Drammen, Norway and was hosted by the Norwegian Marfan Association (Marfanforeningen). This biennial meeting is a chance for the various European Marfan patient organisations (members of MEN) to meet, discuss common projects and listen to a variety…

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