Final report from 4th Conference on ERNs available

The full conference report of the 4th conference on European Reference Networks (that took place November 21-22nd, 2018 in Brussels, Belgium) has been released by the European Commission. This comprehensive report outlines the main topics discussed during the 5 round table and 8 parallel sessions that took place during the two day…

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VASCERN Spotlights: Dr. Robert Damstra

VASCERN Spotlights: Dr. Robert Damstra  What is great about the ERNs is that they have given increased recognition to the field of rare diseases. For a very long time it was mainly secondary lymphedema (that is not a rare disease) that had all of the attention and now, thanks to…

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New #EUProtects video featuring the ERNs!

The European Commission’s EU Protects campaign (#EUProtects) aims to raise awareness of the various ways in which the EU combats global challenges to protect its citizens and their latest video features the European Reference Networks (ERNs)!  Link to the video here The video features the story of Onni, a Finnish…

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