• Thu
    18
    Nov
    2021
    Sat
    20
    Nov
    2021
    Copenhagen, Denmark

    The 10th International Conference of the International Lymphoedema Framework will take place in Copenhagen, Denmark, from November 18-20th, 2021 (new dates due to COVID-19).

    Pernille Henriksen, ePAG Co-Chair for PPL WG, will be present at this event and will give a presentation entitled Infections; the experiences, the fear and the solutions from a patient point of view for the patient day.

    See the preliminary programme here.

    For more information, check out their website here.

  • Thu
    28
    Oct
    2021
    Fri
    29
    Oct
    2021
    Online

    The PIK3CA Related Conditions International Scientific Meeting is hosted and sponsored by CLOVES Syndrome Community and will take place online from October 28th to 29th, 2021.

    This meeting will focus on the diverse range of phenotypes of the spectrum that share a PIK3CA mutation.

    The goals for this meeting are:

    • To bring together the experts in the PIK3CA pathway including clinicians, clinical researchers and basic scientists to allow opportunities to present new information, share data, foster collaboration and encourage networking.
    • To stimulate new ideas.
    • To encourage new researchers to enter the field, to collaborate with others in the field and to collaborate with our patient organizations.
    • To identify the gaps and unmet needs for our heterogenous patient populations.

     

    Professor Miikka VIKKULA, Chair of our Vascular Anomalies Working Group (VASCA-WG), is one of the Scientific Meeting Chairs.

    For more information on this event (abstract submission and registration), take a look here.

  • Wed
    06
    Oct
    2021
    Fri
    08
    Oct
    2021
    Barcelona, Spain

    Due to COVID19, the EMBO Workshop on Vascular Malformations has been postponed. The event was due to take place from April 1st to 3rd, 2020 and will now take place from October 6-8th, 2021 in Barcelona, Spain.

    Professor Miikka VIKKULA, Chair of the VASCERN Vascular Anomalies Working Group (VASCA-WG), will be one of the speakers.

    REGISTRATION DEADLINE - 17 May 2021

    ABSTRACT SUBMISSION DEADLINE - 17 May 2021

    PAYMENT DEADLINE - 1 June 2021

    For more information on this event (programme and registration), take a look here.

  • Mon
    20
    Sep
    2021
    Fri
    24
    Sep
    2021
    Athens, Greece

    The 28th World Congress of Lymphology will take place from September 20th to 24th, 2021 at the Grand Hyatt Hotel in Athens, Greece.

    For more information on this event, check out their website here.

    If you have any questions or need help, please contact: lymphology@concopco.com

  • Thu
    09
    Sep
    2021
    Fri
    10
    Sep
    2021
    Nijmegen, the Netherlands

    The EJP RD - European Joint Programme on Rare Diseases ERN Workshop - Advances in diagnostic and therapeutic methods for lymph flow abnormalities will take place from September 9-10th,  2021 at Radboud University Medical Center, in Nijmegen, the Netherlands.

    "The aim of this workshop is to learn about lymph anatomy and physiology as well as diagnostic and therapeutic options available for rare disease patients with lymph flow disorders (lymphatic malformations, central lymph edema, Noonan syndrome and several others), with a specific attention to the innovative intranodal MR lymphangiography technique. This workshop will be an opportunity for participants to network and get acquainted with each other in order to collaborate in clinical and preclinical research studies involving this technique."

    It will be hosted by Dr. Willemijn Klein (Radboud University Medical Center Nijmegen), member of the  Vascular Anomalies Working Group (VASCA WG), grant recipient of the first EJP-RD Research Training Workshop Call. Other VASCERN members will also be speakers at this event, including Professor Leo Schultze Kool (VASCA WG Co-Chair) and Dr. Robert Damstra (PPL WG Chair), Dr. Friedrich Kapp (VASCA WG member) and ePAG patient advocate Aaike van Oord (LGD Alliance Europe).

    See the Programme here

    For more information on the workshop and to apply, click here

    Deadline to apply: May 31st, 2021

  • Fri
    18
    Jun
    2021
    5:00PM-6:30PM (CET)Videoconference call - Webex

    The 14th VASCERN Council Meeting will take place on June 18th, 2021 from 5 PM to 6:30 PM (Paris time).

  • Fri
    18
    Jun
    2021
    9:00AM-1:00PM (CET)Videoconference call - Webex

    The HHT-WG Virtual Spring Meeting will take place on Friday, June 18th, 2021 from 9AM to 1PM (CET).

  • Thu
    03
    Jun
    2021
    2:00PM-6:00PM (CET)Videoconference call - Webex

    The MSA-WG Virtual Spring Meeting will take place on Monday, June 3rd, 2021 from 2pm to 6pm (CET).

  • Mon
    31
    May
    2021
    6:00PM-7:00PM (CET)Zoom Webinar

    VASCERN will hold a webinar on Monday, May 31st from 6pm to 7pm (CET) on the topic of HHT and the lungs with members of the Hereditary Haemorrhagic Telangiectasia Working Group (HHT-WG): Dr. Hans-Jurgen Mager, Prof. Marco Post, Claudia Crocione (ePAG Co-Chair for HHT) and Christina Grabowski (ePAG Deputy Co-Chair for HHT).

    This webinar will include an informative presentation followed by an interactive Q&A session.

    Register now here
  • Fri
    28
    May
    2021
    8:00AM-9:00AM (CET)Videoconference call - Webex

    The VASCERN HHT-WG Monthly Meeting #46 will take place on May 28th, 2021 at 8 am (Paris time).

  • Thu
    27
    May
    2021
    2:00PM-6:00PM (CET)Videoconference call - Webex

    The HTAD-WG Virtual Spring Meeting will take place on Thursday, May 27th, 2021 from 2pm to 6pm (CET).

  • Tue
    25
    May
    2021
    2:00PM-7:00PM (CET)Videoconference call - Webex

    Day 2 of the VASCA-WG Spring Meeting will take place on Tuesday, May 25th, 2021 from 2pm to 7pm (CET).

  • Wed
    19
    May
    2021
    12:00PM-5:00PM (CET)Videoconference call - Webex

    Day 1 of the VASCA-WG Spring Meeting will take place on Wednesday, May 19th, 2021 from 12pm (noon) to 5pm (CET). It will continue on Tuesday, May 25th, 2021 from 2pm to 7pm (day 2).

  • Thu
    13
    May
    2021
    Sat
    15
    May
    2021
    Online

    The International Society for the Study of Vascular Anomalies (ISSVA) will host virtually a “Debates & Updates” meeting from May 13th to 15th, 2021.

    This 3-day online meeting will include talks about genetics, basic research, novel therapies and debates in the evaluation and management of patients with vascular anomalies.

    Members of our Vascular Anomalies (VASCA) Working Group will attend this online event and Professor Leo SCHULTZE KOOL, Co-Chair of the VASCA-WG, is the ISSVA Meetings Committee Chair.

    Click here to register.

    More information about this event here.

  • Wed
    12
    May
    2021
    3:00PM-7:00PM (CET)Videoconference call - Webex

    The PPL-WG Virtual Spring Meeting will take place on Wednesday, May 12th, 2021 from 3pm to 7pm (CET).

  • Tue
    11
    May
    2021
    10:00AM-11:30AM (CET)Videoconference call - Webex

    The VASCERN ePAG Monthly Meeting will be taking place on May 11th, 2021 from 10 am to 11:30 am (Paris time).

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