• Tue
    10
    May
    2022
    Fri
    13
    May
    2022
    Vancouver, B.C.

    The International Society for the Study of Vascular Anomalies (ISSVA) will be hosting the ISSVA World Congress 2022 (formerly the Workshop) from May 10-13th 2022 in Vancouver, Canada.

    The ISSVA World Congress 2022 will provide the opportunity to learn through a multi-disciplinary approach and will be attended by a wide array of specialists such as intervention radiologists, dermatologists, plastic surgeons, ENT surgeons, pediatricians, pediatric surgeons, oncologists, pathologists... and more! As usual, many members of the Vascular Anomalies (VASCA) WG will be in attendance at this international event.

    More information here

  • Sun
    24
    Apr
    2022
    Paris, France

    Save the Date: THE MARFAN FOUNDATION's What’s New in Genetic Aortic and Vascular Conditions - An international educational meeting for affected people and their families will take place Sunday April 24th, 2022 in Paris, France!

    Many VASCERN members will be presenting at this event including VASCERN Coordinator and Heritable Thoracic Aortic Disease (HTAD WG) Co-Chair, Professor Gullaume Jondeau, HTAD WG Chair, Professor Julie De Backer, and Professor Bart Loeys (HTAD and MSA WG member).

    More information here

    Registration coming in 2022!

  • Thu
    10
    Feb
    2022
    Fri
    11
    Feb
    2022
    Online

     

    On 10-11 February 2022, ERN GENTURIS, the European Reference Network on Genetic Tumour Risk Syndromes, will celebrate its 5-year anniversary with a free online conference.

    The conference will feature updates on the ERN GENTURIS tumour predisposition syndromes, reports on special ERN GENTURIS projects and patient perspectives. It will also include a half-day introductory educational session specially aimed at general practitioners.

    You can register for the conference via:     genturis2022.eu.

    Programme here: ERN_GENTURIS_conference_2022_programme 

  • Mon
    24
    Jan
    2022
    5pm-6.30-pmwebex

    The VASCERN HTAD-WG Monthly Meeting will take place on January 24th, 2022 at 5 pm (Paris time).

  • Sat
    22
    Jan
    2022
    8:30AM-17:00PMOnline

    Save the date: The Marfan Foundation's Spanish Marfan, Loeys-Dietz and VEDS summit (CUMBRE DE LA FUNDACIÓN MARFAN: Información educativa sobre Marfan, Loeys-Dietz, VEDS y condiciones relacionadas para pacientes y familias) will take place online on Saturday, January 22nd, 2022 from 8:30AM-5PM.

    VASCERN is proud to be Community Partner of this event. Dr. Arturo EVANGELISTA, Heritable Thoracic Aortic Disease (HTAD WG) Affiliated Partner member, from Hospital Universitari Vall d'Hebron in Barcelona Spain will be one of the presenters at this event, which will be entirely in Spanish.

    See the save the date flyer in Spanish here

    Registration details to follow soon!

     

  • Wed
    19
    Jan
    2022
    4.00PM-5.00PMwebex

    The VASCERN VASCA-WG Monthly Meeting will take place on January 19 th , 2022 at 4:00 pm (Paris time)

  • Mon
    17
    Jan
    2022
    5.30PM-6.30PMwebex

    The VASCERN PPL-WG Monthly Meeting will take place on January 17th, 2022 at 5:30 pm (Paris time).

  • Tue
    11
    Jan
    2022
    10.00AM-11.30AMZOOM WEBINAR

    The VASCERN ePAG Monthly Meeting will take place on  January 11th, 2022 from 10 am to 11:30 am (Paris time).

  • Mon
    20
    Dec
    2021
    5.30PM-6.30PMWEBEX

    The VASCERN PPL-WG Monthly Meeting will take place on December 20th, 2021 at 5:30 pm (Paris time).

  • Wed
    15
    Dec
    2021
    5:00PM-6:00PMZoom

    VASCERN will hold a webinar on Wednesday December 15th, 2021 from 5pm to 6pm (CET) entitled: Diagnostic and Management Pathway for Lymphatic Malformations with Dr. Nader GHAFFARPOUR, Pediatric surgeon from Karolinska University Hospital in Stockholm, Sweden.

    This will be the the second of a series of four webinars exploring the Patient (Diagnostic and Management) Pathways created by the Vascular Anomalies Working Group (VASCA WG).

    This webinar, that will consist of a scientific presentation followed by a question and answer session, will be primarily directed towards physicians who would like to learn more about these pathways in order to improve their knowledge on these rare vascular anomalies – but all interested participants are welcome to attend!

    Register here
  • Tue
    14
    Dec
    2021

    The European Joint Programme on Rare Diseases just pre-announced the Joint Transnational Call 2022, a funding opportunity for research projects on the development of new analytic tools and pathways to accelerate diagnosis and facilitate diagnostic monitoring of rare diseases.

    The aim of the funding opportunity is to enable scientists in different countries to build an effective collaboration on a common interdisciplinary research project based on complementarities and sharing of expertise, with expected impact to use the results in the future for benefit of patients

    TopicDevelopment of new analytic tools and pathways to accelerate diagnosis and facilitate diagnostic monitoring of rare diseases

    The call will open on December 14th. 

    Timetable, contact, and more information here: https://www.ejprarediseases.org/joint-transnational-call-2022/ 

     

  • Tue
    14
    Dec
    2021
    10.00AM-11.30AMZOOM WEBINAR

    The VASCERN ePAG Monthly Meeting will take place on December 14th, 2021 from 10 am to 11:30 am (Paris time).

  • Mon
    13
    Dec
    2021
    5.00PM-6.00PMwebex

    The VASCERN MSA-WG Monthly Meeting will be taking place on December 13th, 2021 at 5 pm (Paris time).

  • Thu
    02
    Dec
    2021

    The European Joint Programme on Rare Diseases (EJP RD) Networking Support Scheme (NSS) is now open!

    The scheme will provide financial support to applicants for fostering organization of workshops or conferences for new research networks or existing/expanding research networks to strengthen collaborations and to enable exchange of knowledge.

    Eligible applicants to apply for the NSS are health care professionalsresearchers and patient advocacy organizations from the following countries involved in the EJP RD (in alphabetical order):

    Armenia*, Austria, Belgium, Bulgaria*, Croatia*, Czech Republic*, Denmark, Estonia*, Finland, France, Germany, Georgia*, Greece, Hungary*, Ireland, Israel, Italy, Latvia*, Lithuania*, Luxembourg, Malta*, Norway, Poland*, Portugal, Romania*, Serbia*, Slovakia*, Slovenia*, Spain, Sweden, Switzerland, The Netherlands, Turkey*, United Kingdom.

    The countries that are indicated with an asterisk (*) are usually seen as underrepresented countries.

    At least one Principal applicant and two co-applicants from three different countries mentioned above have to apply together for support of a Networking event.

    Maximum budget for networking event: € 30,000

    The NSS is open on a continuous basis. The applications will be collected on the following date:

    • December 2, 2021 at 14.00 (CET)

    All information, including the call documents, can be found on the EJP-RD website here.

  • Wed
    01
    Dec
    2021
    4.00PM-5.00PMWEBEX

    The VASCERN VASCA-WG Monthly Meeting will take place on December 1st, 2021 at 4:00 pm (Paris time).

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