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Hereditary haemorrhagic telangiectasia
Aneurysm Osteoarthritis Syndrome
Arterial Tortuosity Syndrome
Familial forms of bicuspid aortic valve with aortopathy
Familial thoracic aortic aneurysm and aortic dissection
Loeys Dietz Syndrome
Marfan Syndrome
Rare disease with thoracic aortic aneurysm and aortic dissection
Vascular Ehlers Danlos Syndrome
Anhidrotic ectodermal dysplasia-immunodeficiency-osteopetrosis-lymphedema syndrome
Cholestasis-lymphedema syndrome
Dahlberg-Borer-Newcomer syndrome
Deafness-lymphedema-leukemia syndrome
Genetic primary lymphedema
Hennekam syndrome
Hypotrichosis-lymphedema-telangiectasia-renal defect syndrome
Lymphedema
Lymphedema-atrial septal defects-facial changes syndrome
Lymphedema-cerebral arteriovenous anomaly syndrome
Lymphedema-distichiasis syndrome
Lymphedema-posterior choanal atresia syndrome
Macrothrombocytopenia-lymphedema-developmental delay-facial dysmorphism-camptodactyly syndrome
Megalencephaly-capillary malformation-polymicrogyria syndrome
Meige disease
Microcephaly-lymphedema-chorioretinopathy syndrome
Milroy disease
Monosomy 22q13
Non-hereditary late-onset primary lymphedema
Noonan syndrome
Noonan syndrome and Noonan-related syndrome
Noonan syndrome with multiple lentigines
Noonan syndrome-like disorder with juvenile myelomonocytic leukemia
Noonan syndrome-like disorder with loose anagen hair
Primary lymphedema
Primary lymphedema with associated anomalies
Segmental progressive overgrowth syndrome with fibroadipose hyperplasia
Syndromic lymphedema
Turner syndrome
Turner syndrome due to structural X chromosome anomalies
Yellow nail syndrome
Arteriovenous malformation
Blue Rubber Bleb Nevus syndrome
Capillaro-lymphatic malformation
Capillaro-lymphatic-venous malformation
Capillaro-lymphatic-venous malformation with hypertrophy
Capillaro-lymphatic-venous malformation with hypotrophy
Capillary malformation-arteriovenous malformation
Capillary-venous malformation
Cerebral arteriovenous malformation
CLAPO syndrome
CLOVES syndrome
Cutis Marmorata Telangiectatica Congenita
Diffuse capillary malformation with hypertrophy
Diffuse neonatal hemangiomatosis
Epithelioid hemangioma
Facial arteriovenous malformation
Familial cerebral cavernous malformation
Generalized lymphatic anomaly
Glomuvenous malformation
Gorham-Stout syndrome
Infantile hemangioma of rare localization
Kaposiform hemangioendothelioma
Klippel-Trénaunay-Weber syndrome
LUMBAR association
Lymphatic malformation
Lymphatico-venous malformation
Macrocephaly-capillary malformation
Macrocystic lymphatic malformation
Maffucci syndrome
Microcystic lymphatic malformation
Mixed cystic lymphatic malformation
Mucocutaneous venous malformation
Multifocal sporadic venous malformation
Non-involuting congenital hemangioma
Papillary intralymphatic angioendothelioma
Parkes-Weber syndrome
Partially-involuting congenital hemangioma
PHACE association
Proteus syndrome
PTEN hamartoma tumor syndrome
Pulmonary arteriovenous malformation
Pyogenic granuloma
Rapidly involuting congenital hemangioma
Rare capillary malformation
SACRAL association
Spindle cell hemangioma
Sturge-Weber syndrome
Tufted angioma
Venous malformation
Verrucous hemangioma
The second ERN newsletter is now online! 🎉 This edition features two interviews (one with the Chair of the ERN Coordinators Group), the latest news on the enlargement of the 24 networks and some articles presenting good practices (including VASCERN's patient pathways ☺☺) and inspirational stories from patients helped by the ERNs. Read it here ➡ https://ec.europa.eu/newsroom/sante/newsletter-specific-archive-issue.cfm?archtype=specific&newsletter_service_id=1431&newsletter_issue_id=18898&page=1&fullDate=Sun%2012%20May%202019&lang=default MetabERN Ern-Eye eUROGEN ERN-TransplantChild ERKNet ... See more
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