New Video Presenting VASCERN released!

We are very excited to finally share our brand new 5-minute video with you entitled How can VASCERN help you? Link to the video here This video presents VASCERN, its members and the work that our network does to improve the lives of patients with rare vascular diseases. It is…

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Final report from 4th Conference on ERNs available

The full conference report of the 4th conference on European Reference Networks (that took place November 21-22nd, 2018 in Brussels, Belgium) has been released by the European Commission. This comprehensive report outlines the main topics discussed during the 5 round table and 8 parallel sessions that took place during the two day…

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VASCERN Spotlights: Dr. Robert Damstra

VASCERN Spotlights: Dr. Robert Damstra  What is great about the ERNs is that they have given increased recognition to the field of rare diseases. For a very long time it was mainly secondary lymphedema (that is not a rare disease) that had all of the attention and now, thanks to…

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Professor Miikka Vikkula wins First Generet Award!

We would like to congratulate Professor Miikka Vikkula, our Vascular Anomalies Working Group (VASCA-WG) Chair, for being awarded the first Generet Award, with a prize of €500,000 for research into rare diseases! The Generet Fund, managed by the King Baudouin Foundation, aims to support rare disease research by awarding an annual…

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New #EUProtects video featuring the ERNs!

The European Commission’s EU Protects campaign (#EUProtects) aims to raise awareness of the various ways in which the EU combats global challenges to protect its citizens and their latest video features the European Reference Networks (ERNs)!  Link to the video here The video features the story of Onni, a Finnish…

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