New HHT-WG Publication

A new scientific publication by Dr Sophie Dupuis-Girod, HHT-WG Co-chair and Dr Claire Shovlin, HHT-WG Chair, has been published:

The Lung in Hereditary Hemorrhagic Telangiectasia by Sophie Dupuis-Girod, Vincent Cottin, C.L. Shovlin

Respiration 2017;94:315-330 (DOI:10.1159/000479632) has been chosen to be the free access article (Editor’s Choice) of Vol. 94, No. 4, 2017.

For free access go to (it will be available in the next few days)

The conclusion is :

“HHT is an important condition for the practicing pulmonologist. Where formalized regional or national screening/treatment programs are instituted, the life expectancy is increased when compared to historical controls and similar countries operating less well-implemented screening programs. The recent approval of the European Reference Network (VASCERN HHT; ) is likely to improve visibility, transborder care, training, educational opportunities, and hopefully research for clinicians seeking greater insight into this important and long-overlooked condition.”

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