New HHT-WG Publication
September 4, 2017  

A new scientific publication by Dr Sophie Dupuis-Girod, HHT-WG Co-chair and Dr Claire Shovlin, HHT-WG Chair, has been published:

The Lung in Hereditary Hemorrhagic Telangiectasia,  Respiration 2017;94:- (DOI: 10.1159/000479632)  http://www.karger.com/DOI/10.1159/000479632

The conclusion is :

“HHT is an important condition for the practicing pulmonologist. Where formalized regional or national screening/treatment programs are instituted, the life expectancy is increased when compared to historical controls and similar countries operating less well-implemented screening programs. The recent approval of the European Reference Network (VASCERN HHT; https://vascern.eu/expertise/rare-diseases-wgs/hht-wg/ ) is likely to improve visibility, transborder care, training, educational opportunities, and hopefully research for clinicians seeking greater insight into this important and long-overlooked condition.”