Event Information:
-
Wed08Jan20206:00PM-7:00PM (CET)Videoconference call - Webex
VASCERN MSA-WG Monthly Meeting
The VASCERN MSA-WG Monthly Meeting will take place on January 8th, 2020 from 6 pm to 7 pm (Paris time).
Upcoming
-
Mon30Nov20209:00AM-1:00PM (CET)
-
Tue08Dec202010:00AM-11:30AM (CET)
-
Mon14Dec202010:30AM-12:30PM (CET)
-
Rare diseases covered by VASCERN
Anhidrotic ectodermal dysplasia-immunodeficiency-osteopetrosis-lymphedema syndrome
Cholestasis-lymphedema syndrome
Dahlberg-Borer-Newcomer syndrome
Deafness-lymphedema-leukemia syndrome
Hypotrichosis-lymphedema-telangiectasia-renal defect syndrome
Lymphedema-atrial septal defects-facial changes syndrome
Lymphedema-cerebral arteriovenous anomaly syndrome
Lymphedema-distichiasis syndrome
Lymphedema-posterior choanal atresia syndrome
Macrothrombocytopenia-lymphedema-developmental delay-facial dysmorphism-camptodactyly syndrome
Microcephaly-lymphedema-chorioretinopathy syndrome
Non-hereditary late-onset primary lymphedema
Noonan syndrome and Noonan-related syndrome
Noonan syndrome with multiple lentigines
Noonan syndrome-like disorder with juvenile myelomonocytic leukemia
Noonan syndrome-like disorder with loose anagen hair
Primary lymphedema with associated anomalies
Segmental progressive overgrowth syndrome with fibroadipose hyperplasia
Blue Rubber Bleb Nevus syndrome
Capillary malformation-arteriovenous malformation
Cerebral arteriovenous malformation
Cutis Marmorata Telangiectatica Congenita
Diffuse neonatal hemangiomatosis
Facial arteriovenous malformation
Familial cerebral cavernous malformation
Infantile hemangioma of rare localization
Kaposiform hemangioendothelioma
Klippel-Trénaunay-Weber syndrome
Macrocystic lymphatic malformation
Megalencephaly-capillary malformation-polymicrogyria syndrome
Microcystic lymphatic malformation
Mixed cystic lymphatic malformation
Mucocutaneous venous malformation
Non-involuting congenital hemangioma
Partially-involuting congenital hemangioma
Primary intralymphatic angioendothelioma
Pulmonary arteriovenous malformation
Follow us on twitter
Like Us On Facebook
-
Recent Posts
- Manifesto for European Health Union – Sign to support future rare disease policy
- VASCA WG sets up monthly CPMS case discussion meetings
- VASCERN Days 2020: accomplishment of our first online annual seminar!
- New video shows benefits of making FAIR Registries
- Continuous Monitoring of ERNs: Data submitted for Semester 1 of 2020
Subscribe to our Newsletters
-
