The EURORDIS Round Table of Companies (ERTC) Workshop will take place online on 20-21 October 2021 on the topic of "The impact of the EU regulatory network strategy 2020-2025 on the development of orphan medicines".

This is your opportunity to join us to discuss and gain insights into new methods to analyse data, new sources of data and changes in the way new Clinical Trials are conducted.

Register for this free workshop here

Programme here

The VASCERN VASCA-WG Monthly Meeting will take place on October 20th, 2021 at 4:00 pm (Paris time).

The VASCERN HHT-WG Monthly Meeting will take place on October 22, 2021 at 8 am (Paris time).

The ERN Coordinators Group Meeting will take place on October 22nd, 2021 from 8:30 AM to 4 PM (CET) in Strasbourg (France).

The VASCERN HTAD-WG Monthly Meeting will take place on October 25th, 2021 at 5 pm (Paris time)

The PIK3CA Related Conditions International Scientific Meeting is hosted and sponsored by CLOVES Syndrome Community and will take place online from October 28th to 29th, 2021.

This meeting will focus on the diverse range of phenotypes of the spectrum that share a PIK3CA mutation.

The goals for this meeting are:

• To bring together the experts in the PIK3CA pathway including clinicians, clinical researchers and basic scientists to allow opportunities to present new information, share data, foster collaboration and encourage networking.
• To stimulate new ideas.
• To encourage new researchers to enter the field, to collaborate with others in the field and to collaborate with our patient organizations.
• To identify the gaps and unmet needs for our heterogenous patient populations.

Professor Miikka VIKKULA, Chair of our Vascular Anomalies Working Group (VASCA-WG), is one of the Scientific Meeting Chairs.

For more information on this event (abstract submission and registration), take a look here.

The 10th International Conference of the International Lymphoedema Framework will take place in Copenhagen, Denmark, from November 18-20th, 2021 (new dates due to COVID-19).

Pernille Henriksen, ePAG Co-Chair for PPL WG, will be present at this event and will give a presentation entitled Infections; the experiences, the fear and the solutions from a patient point of view for the patient day.

See the preliminary programme here.

For more information, check out their website here.