• Wed
    16
    Jun
    2021
    3:45PM-5:00PM (CET)Videoconference call - Webex

    The VASCERN VASCA-WG Monthly Meeting will take place on June 16th, 2021 at 3:45 pm (Paris time).

  • Fri
    18
    Jun
    2021
    5:00PM-6:30PM (CET)Videoconference call - Webex

    The 14th VASCERN Council Meeting will take place on June 18th, 2021 from 5 PM to 6:30 PM (Paris time).

  • Fri
    18
    Jun
    2021
    8:30AM-12:30PM (CET)Videoconference call - Webex

    The VASCERN HHT-WG Virtual Spring Meeting will take place on Friday, June 18th, 2021 from 8:30AM to 12:30PM (CET).

  • Mon
    21
    Jun
    2021
    5:30PM-6:30PM (CET)Videoconference call - Webex

    The VASCERN PPL-WG Monthly Meeting will take place on June 21st, 2021 at 5:30 pm (Paris time).

  • Thu
    24
    Jun
    2021
    5:30PM-6:30PM (CET)Videoconference call - Webex

    The inter ERN Monitoring Working Group will have an online meeting on June 24th, 2021 at 5:30 PM (CET).

  • Mon
    28
    Jun
    2021
    5:00PM-6:30PM (CET)Videoconference call - Webex

    The VASCERN HTAD-WG Monthly Meeting will take place on June 28th, 2021 at 5 pm (Paris time).

  • Tue
    29
    Jun
    2021
    5:00PM-6:00PM (CET)Videoconference call - Webex

    The VASCERN Communication Advisory Task Force Meeting will take place online on June 29th, 2021 at 5 PM (CET).

  • Wed
    30
    Jun
    2021
    5:00PM-6:00PM (CET)Zoom Webinar

    VASCERN will hold a webinar on Wednesday, June 30th, 2021 from 5pm to 6pm (CET) entitled: On collagen, the Ehlers-Danlos Syndromes and vascular fragility: what's in a name? with presented Dr. Fransiska Malfait (Medium-Sized Arteries Working Group Co-chair), from Ghent University Hospital, Belgium.

    This webinar, that will consist of a scientific presentation followed by a question and answer session, will be primarily directed towards health care professionals – but all interested participants are welcome to attend!

    Please register to join here!

     

  • Thu
    01
    Jul
    2021
    5:00PM-6:00PM (CET)Videoconference call - Webex

    The inter ERN Monitoring Working Group will have an online meeting on July 1st, 2021 at 5 PM (CET).

  • Thu
    09
    Sep
    2021
    Fri
    10
    Sep
    2021
    Nijmegen, the Netherlands

    The EJP RD - European Joint Programme on Rare Diseases ERN Workshop - Advances in diagnostic and therapeutic methods for lymph flow abnormalities will take place from September 9-10th,  2021 at Radboud University Medical Center, in Nijmegen, the Netherlands.

    "The aim of this workshop is to learn about lymph anatomy and physiology as well as diagnostic and therapeutic options available for rare disease patients with lymph flow disorders (lymphatic malformations, central lymph edema, Noonan syndrome and several others), with a specific attention to the innovative intranodal MR lymphangiography technique. This workshop will be an opportunity for participants to network and get acquainted with each other in order to collaborate in clinical and preclinical research studies involving this technique."

    It will be hosted by Dr. Willemijn Klein (Radboud University Medical Center Nijmegen), member of the Vascular Anomalies Working Group (VASCA WG), grant recipient of the first EJP-RD Research Training Workshop Call. Other VASCERN members will also be speakers at this event, including Professor Leo Schultze Kool (VASCA WG Co-Chair) and Dr. Robert Damstra (PPL WG Chair), Dr. Friedrich Kapp (VASCA WG member) and ePAG patient advocate Aaike van Oord (LGD Alliance Europe).

    See the Programme here

    For more information on the workshop and to apply, click here

    Deadline to apply: May 31st, 2021

  • Mon
    20
    Sep
    2021
    Fri
    24
    Sep
    2021
    Athens, Greece

    The 28th World Congress of Lymphology will take place from September 20th to 24th, 2021 at the Grand Hyatt Hotel in Athens, Greece.

    For more information on this event, check out their website here.

    If you have any questions or need help, please contact: lymphology@concopco.com

  • Thu
    30
    Sep
    2021
    Fri
    01
    Oct
    2021
    Leiden, The Netherlands

    In the context of EJP RD’s ERN Workshops, a face-to-face workshop on clinical epidemiological research for ERNs titled “Clinical Research: The Basics & Beyond” (consisting of presentations by experts in the field of epidemiology and a feedback session on the research projects of participants) is being organised by Prof. Olaf Dekkers and Prof. Frits Rosendaal of the Leiden University Medical Center.

    The in-person event will take place over two days on 30th September and 1st October 2021 at the Hotel Golden Tulip Leiden Centre, Schipholweg 3, 2316 XB Leiden, the Netherlands.

    The workshop is open by prior registration and selection to medical specialists affiliated to an ERN Full Member or Affiliated Partner institution and who have a special interest in clinical research with databasesRegistration closes on 18th June 2021, and those selected to participate from among the applicants will be informed by 9th July 2021 of their selection.

    Deadline to apply: 18th June 2021

    More information and registration here: https://www.ejprarediseases.org/event/clinical-research-with-databases-the-basics-beyond-workshop-in-clinical-epidemiological-research-for-erns/

  • Wed
    06
    Oct
    2021
    Fri
    08
    Oct
    2021
    Barcelona, Spain

    Due to COVID19, the EMBO Workshop on Vascular Malformations has been postponed. The event was due to take place from April 1st to 3rd, 2020 and will now take place from October 6-8th, 2021 in Barcelona, Spain.

    Professor Miikka VIKKULA, Chair of the VASCERN Vascular Anomalies Working Group (VASCA-WG), will be one of the speakers.

    REGISTRATION DEADLINE - 17 May 2021

    ABSTRACT SUBMISSION DEADLINE - 17 May 2021

    PAYMENT DEADLINE - 1 June 2021

    For more information on this event (programme and registration), take a look here.

  • Thu
    28
    Oct
    2021
    Fri
    29
    Oct
    2021
    Online

    The PIK3CA Related Conditions International Scientific Meeting is hosted and sponsored by CLOVES Syndrome Community and will take place online from October 28th to 29th, 2021.

    This meeting will focus on the diverse range of phenotypes of the spectrum that share a PIK3CA mutation.

    The goals for this meeting are:

    • To bring together the experts in the PIK3CA pathway including clinicians, clinical researchers and basic scientists to allow opportunities to present new information, share data, foster collaboration and encourage networking.
    • To stimulate new ideas.
    • To encourage new researchers to enter the field, to collaborate with others in the field and to collaborate with our patient organizations.
    • To identify the gaps and unmet needs for our heterogenous patient populations.

     

    Professor Miikka VIKKULA, Chair of our Vascular Anomalies Working Group (VASCA-WG), is one of the Scientific Meeting Chairs.

    For more information on this event (abstract submission and registration), take a look here.

  • Thu
    18
    Nov
    2021
    Sat
    20
    Nov
    2021
    Copenhagen, Denmark

    The 10th International Conference of the International Lymphoedema Framework will take place in Copenhagen, Denmark, from November 18-20th, 2021 (new dates due to COVID-19).

    Pernille Henriksen, ePAG Co-Chair for PPL WG, will be present at this event and will give a presentation entitled Infections; the experiences, the fear and the solutions from a patient point of view for the patient day.

    See the preliminary programme here.

    For more information, check out their website here.

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