• Mon
    24
    Jun
    2019
    Brussels

    The 8th meeting of the European Reference Networks Coordinators Group (ERN-CG) will take place in Brussels Belgium on the 24th of  June 2019.

    Both VASCERN's coordinator, Prof. Guillaume Jondeau, and Project Manager, Marine Hurard, will be in attendance.

  • Mon
    24
    Jun
    2019
  • Tue
    25
    Jun
    2019
  • Wed
    26
    Jun
    2019
    from 11am to 5pmLeiden

    One representative per ERN will participate in the focus group meeting of WP17 of EJP-RD. The meeting will take place on 26 June in Leiden

    The objective of this focus group meeting will be to develop the ERN research training program based on the EJP-RD ERN survey results

    The meeting participants will discuss details for the two main schemes – training workshops/seminars and fellow exchanges - that the ERN research training program will be made of. Topics to be discussed include topic prioritisation, participants/fellow selection and assessment.

  • Thu
    27
    Jun
    2019
    5:30 am

    Here is the agenda:

    1.- Update on the Taxonomy study
    2.- Update on the actions included in Health Programme ( Clinical guidelines, short stays of professionals)
    3.- State of play on training and education: new action 2020

  • Mon
    01
    Jul
    2019
    London

    The MSA-WG face-to-face meeting will take place on July 1, 2019 in London, UK. It will be hosted by Dr. Leema Robert, Chair of the MSA-WG.

  • Tue
    02
    Jul
    2019
  • Wed
    03
    Jul
    2019
  • Wed
    10
    Jul
    2019
    Fri
    12
    Jul
    2019
    Warth (Canton Thurgau), Switzerland

    The 7th Rare Diseases Summer School will take place in the Kartause Ittingen, Warth (Canton Thurgau), Switzerland, from July 10th to July 12th 2019.  This summer school (aimed mainly for clinicians, physician-scientists, postdocs, and PhD students) is organised by radiz - Rare Disease Initiative Zürich of the University of Zurich.

    A wide variety of subjects in the arena of rare diseases will be covered. There will be lectures given by national and international rare disease experts, workshops and poster presentations by participants. Subjects include drug development, model organisms, how to choose clinical endpoints, clinical trials, regulatory aspects, patient registries, patient initiated research, ethical considerations, as well as what rare diseases may tell us about common diseases.

    Up to 30 participants will be admitted, so space is limited. Participants are expected to bring a poster about their work or research interests related to rare diseases.

    Find the full programme here.

    For all further information, including the application procedure, click here.

    Application deadline is April 2nd 2019.

  • Mon
    15
    Jul
    2019
  • Wed
    17
    Jul
    2019
  • Thu
    18
    Jul
    2019
  • Mon
    22
    Jul
    2019
  • Fri
    26
    Jul
    2019
  • Tue
    06
    Aug
    2019
    Philadelphia
    The Penn Medicine Orphan Disease Center (ODC) will host the 6th Annual Million Dollar Bike Ride to raise money for rare disease research. Every donation made to Team LGDA / LMI will be matched by Penn Medicine ODC up to $30,000 and will be used to fund research into these rare diseases. Highline Park - 31st & Chestnut Philadelphia. PA 13/34/72 Mile Options

    For more informations click here or here.

  • Tue
    06
    Aug
    2019
  • Wed
    07
    Aug
    2019
  • Mon
    19
    Aug
    2019
  • Wed
    21
    Aug
    2019
  • Sun
    25
    Aug
    2019
    Tue
    27
    Aug
    2019
    Krakow, Poland

    Registration free until 01.08.2019

  • Mon
    26
    Aug
    2019
  • Sat
    31
    Aug
    2019
    Wed
    04
    Sep
    2019
    Paris, France

    Bringing the world of cardiology together :

    • 32,000 healthcare professionals
    • From 150 countries
    • 4,500 abstracts presented
    • 500 experts sessions
    • 400 cardiology topics
    • 200 exhibiting companies
    • 5 days of scientific sessions

    More informations : click here 

  • Thu
    12
    Sep
    2019
    Fri
    13
    Sep
    2019
    London

    The Pediatric and Primary Lymphedema WG (PPL WG) face-to-face meeting will take place on September 12-13th, 2019 in London. It will be lead by Dr Malou Van Zanten (PPL WG member from HCP St Georges).
    Members of PPL-WG are invited to a dinner on the evening of September 12.

  • Thu
    19
    Sep
    2019
    Sun
    22
    Sep
    2019
  • Mon
    23
    Sep
    2019
    Fri
    27
    Sep
    2019
    Istituto Superiore di Sanità, Rome, Italy

    The International Summer School on Rare Disease Registries and FAIRification of Data is a part of a series of training activities proposed by the European Joint Programme on Rare Diseases (EJP RD).

    For more informations : click here 

  • Mon
    30
    Sep
    2019
    Brussels

    The conference will highlight the results of the current and previous EU Health Programmes and present the new approach in the future Multiannual Financial Framework for 2021-2027.

    For more information, click here

  • Thu
    07
    Nov
    2019
    Fri
    08
    Nov
    2019
    TBA

    VASCERN's annual seminar, VASCERN Days 2019, will take place from Novembre 7-8, 2019 in Brussels Belgium!

  • Tue
    12
    May
    2020
    Fri
    15
    May
    2020
    Vancouver, Canada

    The International Society for the Study of Vascular Anomalies (ISSVA) will host ISSVA 2020, the 23rd  Workshop for the Study of Vascular Anomalies,  in the beautiful city of Vancouver, in British Columbia, Canada from May 12-15, 2020.  Vancouver is great site for this Workshop!  It is a city that unites an urban metropolis with the sea and mountains.  It will also be the first time since 2008 that the Workshop will be held in North America.

    The Scientific Program will be a venue to present the latest advances in research and science in vascular anomalies.  It will also feature introductory and advanced sessions that attendees can use to increase their knowledge in the fundamentals and advanced topics in the field.  ISSVA 2020 will provide a multidisciplinary forum for many specialties including – but not limited to - interventional radiologists, dermatologists, plastic surgeons, ENT surgeons, oncologists, pediatricians, pediatric surgeons, and pathologists.

    The ISSVA Workshop has continuously grown thanks to your dedication to the field and participation in the meeting. We invite you to participate in ISSVA 2020 to help us continue this trend of knowledge sharing through oral presentations, difficult cases, and poster sessions.

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