• Sat
    27
    Apr
    2019
    Tue
    30
    Apr
    2019
     Antwerp, Belgium

    The fourth cardiogenetics training course supported by the European Society of Human Genetics will take place from Saturday April 27th to Tuesday April 30th 2019.

    The course venue alternates between Manchester and Antwerp and this year the course is organized again in Antwerp (course organizers: Prof Bill Newman, Manchester Centre for Genomic Medicine; Prof Bart Loeys, Clinical Genetics, University of Antwerp; prof Johan Saenen, cardiology, University of Antwerp)

    The course is mainly intended for young trainees in genetics and cardiology and consists of lectures, interactive and case-based teaching covering clinical and molecular aspects of cardiogenetic disorders.

    Prof. Bart Loeys, member of  the VASCERN HTAD-WG will give several presentations at this event, including one on aortopathies.

    For the course program, all other practical information and to register for the course please visit the training course website: http://ngs.uantwerpen.be/cargen2019/

  • Mon
    29
    Apr
    2019
    17.00-18.00Videoconference call - Webex
  • Thu
    02
    May
    2019
    Fri
    03
    May
    2019
    Rotterdam, the Netherlands

    The International Consortium for Health Outcomes Measurement (ICHOM) Conference 2019 will take place from May 2-3rd, 2019 in Rotterdam, The Netherlands.

    The conference will feature keynotes and discussion panels, as well as three breakout tracks (Clinical Care, Data and Innovation, and Strategy), comprising of three sessions each.

    For more information: click here 

  • Wed
    08
    May
    2019
    Sat
    11
    May
    2019
    Toronto, Canada

    The RE(ACT) CONGRESS, the International Congress on Research of Rare and Orphan Diseases, will take place in Toronto, Canada from May 8-11, 2019.

    All information can be found here

  • Fri
    10
    May
    2019
    8.00-09.00Videoconference call - Webex
  • Tue
    14
    May
    2019
    Amsterdam, The Netherlands

    VASCERN's Heritable Thoracic Aortic Diseases Working Group (HTAD-WG) will have a face-to-face meeting in Amsterdam, The Netherlands on May, 14th, 2019.

  • Tue
    14
    May
    2019
    10.00-12.00

    Marine Hurard, Project Manger will represent VASCERN at this online meeting.

  • Wed
    15
    May
    2019
  • Thu
    16
    May
    2019
    Fri
    17
    May
    2019
    Hospital Saint-Louis ( Paris)

    Professeur Jondeau will represent VASCERN at this meeting.

  • Fri
    17
    May
    2019
    Sat
    18
    May
    2019
    Bucarest, Romania

    The next full EURORDIS Membership Meeting (EMM) will take place on 17 - 18 May 2019 in Bucharest. Details on how to register will be made available on this page shortly.

    EURORDIS is offering patient fellowships for up to 40 patient advocates to attend the EURORDIS Membership Meeting 2019 Bucharest.

    These fellowships aim to empower patient advocates by offering a platform for networking opportunities, access to information and sharing experiences. The programme covers:

    • Registration (fee waiver)
    • Travel (return trip economy fare flight or train)
    • Accommodation

    The total of the travel and hotel expenses reimbursed by EURORDIS cannot exceed 400€ per fellow.

    To apply for a fellowship

    Patient representatives wishing to benefit from this fellowship programme are invited to fill out and return the Patient Fellowship Programme Application Form.

    Deadline: 28 February 2019

    Selection of fellowship beneficiaries

    Fellows will be selected based on their advocacy skills and objectives, by an ad-hoc committee and notified by 15 March 2019.

    The selection criteria are defined in the Patient fellowship Evaluation Scale.

    For more information, please contact: anja.helm@eurordis.org

    For more informations about this event, click here

  • Mon
    27
    May
    2019
    Tue
    28
    May
    2019
    Brussels, Belgium

    VASCERN's  Vascular Anomalies Working Group (VASCA-WG) will hold a face-to-face meeting from May 27-28th, 2019 in Brussels, Belgium.

    This meeting is organized in Brussels ( Cliniques universitaires Saint Luc.) and hosted by Miikka Vikkula ( Chair of VASCA working-group).

  • Fri
    07
    Jun
    2019
    Paris, France

    The French network on rare multisystemic vascular diseases (FAVA-Multi) will hold their annual meeting on June 7th, 2019 in Paris, France. VASCERN will be presented at this event.

  • Wed
    12
    Jun
    2019
    Sun
    16
    Jun
    2019
    PUERTO RICO

     Registration is now open for the 13th Annual International Scientific Conference!

     This June 12 - 16, in San Juan, Puerto Rico for invited speakers, cross-disciplinary sessions, abstract poster viewings, and more! Early Bird pricing is now live through April 30. Register here

    This biennial meeting is a must-attend for both established and early-stage researchers, clinicians experienced in treating HHT, those entering the field, and patients interested in learning more on the medical side.

  • Thu
    13
    Jun
    2019
    Sat
    15
    Jun
    2019
    Chicago, USA

    The 9th International Conference of the International Lymphoedema Framework (ILF) will take place from June 13-15th, 2019 in Chicago, USA.

    VASCERN PPL-WG member, Dr Kristiana Gordon, is already a confirmed to speak at this event.

    For more information, click here

  • Sat
    15
    Jun
    2019
    Tue
    18
    Jun
    2019
    Gothenburg, Sweden

    The European Human Genetics Conference hosted by The European Society of Human Genetics (ESHG) will take place from June 15-18, 2019 in Gothenburg, Sweden.

    Prof Bart Loeys, member of the HTAD-WG and MSA-WG, is a confirmed speaker at this event.

    To see the list of speakers : click here 

    For the programme of the event : click here 

  • Mon
    01
    Jul
    2019
    London

    The Face to Face MSA-WG meeting will take place on July 1, 2019 in London, UK. It will be hosted by Dr. Leema Robert, Chair of the MSA-WG.

  • Wed
    10
    Jul
    2019
    Fri
    12
    Jul
    2019
    Warth (Canton Thurgau), Switzerland

    The 7th Rare Diseases Summer School will take place in the Kartause Ittingen, Warth (Canton Thurgau), Switzerland, from July 10th to July 12th 2019.  This summer school (aimed mainly for clinicians, physician-scientists, postdocs, and PhD students) is organised by radiz - Rare Disease Initiative Zürich of the University of Zurich.

    A wide variety of subjects in the arena of rare diseases will be covered. There will be lectures given by national and international rare disease experts, workshops and poster presentations by participants. Subjects include drug development, model organisms, how to choose clinical endpoints, clinical trials, regulatory aspects, patient registries, patient initiated research, ethical considerations, as well as what rare diseases may tell us about common diseases.

    Up to 30 participants will be admitted, so space is limited. Participants are expected to bring a poster about their work or research interests related to rare diseases.

    Find the full programme here.

    For all further information, including the application procedure, click here.

    Application deadline is April 2nd 2019.

  • Tue
    06
    Aug
    2019
    Philadelphia
    The Penn Medicine Orphan Disease Center (ODC) will host the 6th Annual Million Dollar Bike Ride to raise money for rare disease research. Every donation made to Team LGDA / LMI will be matched by Penn Medicine ODC up to $30,000 and will be used to fund research into these rare diseases. Highline Park - 31st & Chestnut Philadelphia. PA 13/34/72 Mile Options

    For more informations click here or here.

  • Sat
    31
    Aug
    2019
    Wed
    04
    Sep
    2019
    Paris, France

    Bringing the world of cardiology together :

    • 32,000 healthcare professionals
    • From 150 countries
    • 4,500 abstracts presented
    • 500 experts sessions
    • 400 cardiology topics
    • 200 exhibiting companies
    • 5 days of scientific sessions

    More informations : click here 

  • Thu
    12
    Sep
    2019
    Fri
    13
    Sep
    2019
  • Thu
    19
    Sep
    2019
    Sun
    22
    Sep
    2019
  • Thu
    07
    Nov
    2019
    Fri
    08
    Nov
    2019
    TBA

    VASCERN's annual seminar, VASCERN Days 2019, will take place from Novembre 7-8, 2019. Location and further details to be announced!

  • Tue
    12
    May
    2020
    Fri
    15
    May
    2020
    Vancouver, Canada

    The International Society for the Study of Vascular Anomalies (ISSVA) will host ISSVA 2020, the 23rd  Workshop for the Study of Vascular Anomalies,  in the beautiful city of Vancouver, in British Columbia, Canada from May 12-15, 2020.  Vancouver is great site for this Workshop!  It is a city that unites an urban metropolis with the sea and mountains.  It will also be the first time since 2008 that the Workshop will be held in North America.

    The Scientific Program will be a venue to present the latest advances in research and science in vascular anomalies.  It will also feature introductory and advanced sessions that attendees can use to increase their knowledge in the fundamentals and advanced topics in the field.  ISSVA 2020 will provide a multidisciplinary forum for many specialties including – but not limited to - interventional radiologists, dermatologists, plastic surgeons, ENT surgeons, oncologists, pediatricians, pediatric surgeons, and pathologists.

    The ISSVA Workshop has continuously grown thanks to your dedication to the field and participation in the meeting. We invite you to participate in ISSVA 2020 to help us continue this trend of knowledge sharing through oral presentations, difficult cases, and poster sessions.

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