World Lymphedema Day (WLD) will take place on March 6th, 2020! WLD is an annual patient advocate-driven celebration that was officially established by the U.S. Senate in 2016, and since then, has developed into a truly global movement.

The patient organisations and patient advocates for Pediatric and Primary Lymphedema (PPL) of VASCERN’s European Patient Advocacy Group (ePAG) have many events and activities lined up! Many associations are hosting webinars, sending daily newsletters and creating other events throughout March. You can find more information on the websites or social media profiles of the local associations.

The monthly meeting of this interERN Working Group will take place online on March 8th, 2021 at 10:00 AM (CET). Romain Alderweireldt (VASCERN Ethical and Legal WG Chair) will be representing VASCERN.

The VASCERN MSA-WG Monthly Meeting will be taking place on March 8th, 2021 at 5 pm (Paris time).

The VASCERN ePAG Monthly Meeting will be taking place on March 9th, 2021 from 10 am to 11:30 am (Paris time).

The Internal ERN Coordinators Group Meeting will take place online on March 10th, 2021 at 5:00PM (CET).

The 4th ERN Transversal Study Group on Pregnancy and Family Planning will take place online on March 15th, 2021 at 2:30 PM (CET).

The VASCERN PPL-WG Monthly Meeting will take place on March 15th, 2021 at 5:30 pm (Paris time).

The VASCERN VASCA-WG Monthly Meeting will take place on March 17th, 2021 at 3:45 pm (Paris time).

The VASCERN Registry Technical Teams Working Group Meeting will take place online on Thursday March 18th, 2021 from 4 PM to 5 PM (CET).

The VASCERN HTAD-WG Monthly Meeting will take place on March 22nd, 2021 at 5 pm (Paris time).

VASCERN will hold a webinar on Wednesday March 24th from 5:00-6pm CET on the topic of Infections and Lymphedema with Pediatric and Primary Lymphedema Working-Group (PPL-WG) members Dr. Kirsten VAN DUINEN, Dr. Tanja PLANINŠEK RUČIGAJ, Manuela LOURENÇO MARQUES (ePAG Deputy Co-Chair for PPL) and Pernille HENRIKSEN (ePAG Co-Chair for PPL).

Please register to join here!

This webinar will include an informative presentation followed by a Q&A session, featuring questions collected from the PPL patient community! Don't miss it!

The VASCERN HHT-WG Monthly Meeting #44 will take place on March 26th, 2021 at 8 am (Paris time).

The 4th Scientific Meeting on Vascular Ehlers Danlos Syndrome organised by The DEFY Foundation will be held virtually on April 9th, 2021 from 10:00 am to 4:00 pm Eastern.

This event is powered by The Marfan Foundation and The VEDS Movement.

Key areas of focus will be sharing knowledge in basic, translational and clinical aspects of Vascular Ehlers-Danlos syndrome with the goals of developing research directions for advancing therapeutic strategies, development and/or integration of pioneering concepts and theories and establishing collaborations.

The Internal ERN Coordinators Group Meeting will take place online on April 28th, 2021 at 5:00PM (CET).

The 10th International Conference of the International Lymphoedema Framework will take place in Copenhagen, Denmark, from May 6-8, 2021 (new dates due to COVID-19).

Pernille Henriksen, ePAG Co-Chair for PPL WG, will be present at this event and will give a presentation entitled Infections; the experiences, the fear and the solutions from a patient point of view for the patient day on Saturday, May 8th, 2021.

See the preliminary programme here.

For more information, check out their website here.

Due to the COVID19, the EMBO Workshop on Vascular Malformations has been postponed. The event was due to take place from April 1st to 3rd, 2020 and will now take place from June 14th -16th, 2020 in Barcelona, Spain.

Professor Miikka VIKKULA, Chair of the VASCERN Vascular Anomalies Working Group (VASCA WG), will be one of the speakers!

REGISTRATION DEADLINE - 17 May 2021

ABSTRACT SUBMISSION DEADLINE - 17 May 2021

PAYMENT DEADLINE - 1 June 2021

For more information on this event (programme and registration), take a look here.