We are very pleased to announce the publication of an article entitled “𝙚𝙃𝙚𝙖𝙡𝙩𝙝 𝙛𝙤𝙧 𝙥𝙖𝙩𝙞𝙚𝙣𝙩𝙨 𝙬𝙞𝙩𝙝 𝙧𝙖𝙧𝙚 𝙙𝙞𝙨𝙚𝙖𝙨𝙚𝙨: 𝙩𝙝𝙚 𝙚𝙃𝙚𝙖𝙡𝙩𝙝 𝙒𝙤𝙧𝙠𝙞𝙣𝙜 𝙂𝙧𝙤𝙪𝙥 𝙤𝙛 𝙩𝙝𝙚 𝙀𝙪𝙧𝙤𝙥𝙚𝙖𝙣 𝙍𝙚𝙛𝙚𝙧𝙚𝙣𝙘𝙚 𝙉𝙚𝙩𝙬𝙤𝙧𝙠 𝙤𝙣 𝙍𝙖𝙧𝙚 𝙈𝙪𝙡𝙩𝙞𝙨𝙮𝙨𝙩𝙚𝙢𝙞𝙘 𝙑𝙖𝙨𝙘𝙪𝙡𝙖𝙧 𝘿𝙞𝙨𝙚𝙖𝙨𝙚𝙨 (𝙑𝘼𝙎𝘾𝙀𝙍𝙉) in the Orphanet Journal of Rare Diseases (OJRD), which outlines the work of our former eHealth Working Group.
"Overall, the work carried out by the eHealth WG of VASCERN can be seen as a pilot experience that may serve as a basis to for collaborative development of patient-centred eHealth tools that answer the needs of patients with various rare diseases, not limited to rare multisystemic vascular diseases. By expanding the multidisciplinary approach here described, clinical and research networks can take advantage of eHealth services and use them as strategic assets in achieving the ultimate goal of ensuring equity of access to prevention programs, timely and accurate diagnosis and specialized care for patients with rare diseases throughout Europe."
Read more and access the full article here: https://vascern.eu/new-ojrd-publication-highlights-vascerns-ehealth-services-and-main-actions/ ... See more
