Vascular Anomalies (VASCA-WG)
Registry
The VASCA Registry project consists of the creation of a FAIR registry dedicated to the diseases covered by the VASCA-WG. It has been designed to include the European core dataset as well as set of data specific to the rare diseases of VASCA.
More information on the Registry page here.
The VASCA-WG equally endorses the SECURE-VA registry, which aims to report the COVID-19 cases in Vascular Anomalies (VA) patients globally, in both children and adults.