The VASCERN Registry is an essential tool that offers a centralized repository for clinical data and information related to rare vascular diseases. By gathering clinical data, the registry aims to improve research, diagnosis, and care for patients. With standardized data collection and collaboration among healthcare professionals, researchers, and patients, the registry empowers personalized treatment, fosters innovation, and enhances patient care.
The VASCA Registry project consists of the creation of a FAIR registry dedicated to the diseases covered by the VASCA-WG. It has been designed to include the European core dataset as well as set of data specific to the rare diseases of VASCA.
More information on the VASCA-WG registry is available on the Registry page here.
The VASCA-WG equally endorses the SECURE-VA registry, which aims to report the COVID-19 cases in Vascular Anomalies (VA) patients globally, in both children and adults.