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Pediatric and Primary Lymphedema (PPL-WG)
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Members

Robert J. DAMSTRA 16
Chair
Dr. Robert J. DAMSTRA
Dermatologist
Pubmed
Sarah THOMIS
Co-Chair
Pr. Sarah THOMIS
Vascular Surgeon
Pubmed

HEALTHCARE PROVIDER (HCP) FULL MEMBERS

Belgium
AZ Sint-Maarten

Lymph Center

Robert J. DAMSTRA 13
Dr. Guido GIACALONE
Vascular Surgeon
Pubmed
Florence BELVA
Dr. Florence BELVA
Vascular Surgeon
Pubmed
University Hospitals Leuven

Leuven Lymphovenous Center

Sarah THOMIS
Pr. Sarah THOMIS
Vascular Surgeon
Pubmed
Nele DEVOOGDT
Dr. Nele DEVOOGDT
Physiotherapist
Pubmed
Denmark
Rigshospitalet

PPL European Reference Centre, Department of Clinical Medicine

Robert J. DAMSTRA 9
Dr. Tonny KARLSMARK
Clinical Associate Professor
Pubmed
Robert J. DAMSTRA 8
Dr. Hanne BUCIEK HOVE
Consultant Clinical Geneticist
Pubmed
Finland
Helsinki University Hospital

PPL European Reference Centre, Department of Plastic Surgery

Sinikka SUOMINEN
Pr. Sinikka SUOMINEN
Plastic Surgeon
Pubmed
Heli KAVOLA
Dr. Heli KAVOLA
Plastic Surgeon
Pubmed
France
AP-HP-HEGP Hôpital Européen Georges Pompidou

Primary Lymphedema Unit, Hôpital Cognacq-Jay

Stéphane VIGNES 2
Dr. Stéphane VIGNES
Specialist in Internal Medecine Lymphology
Pubmed
Caroline FOURGEAUD 1
Dr. Caroline FOURGEAUD
Vascular Physician
Pubmed
Germany
University Medical Center Freiburg

 Földi Clinic

Robert J. DAMSTRA 4
Dr. Michael OBERLIN
Specialist in internal medicine Wound Management / Lymphology
Pubmed
Netherlands
Nij Smellinghe hospital

Expert Center for lymphovascular medecine

Robert J. DAMSTRA 16
Dr. Robert J. DAMSTRA
Dermatologist
Pubmed
Kirsten VAN DUINEN 1
Dr. Kirsten VAN DUINEN
Dermatologist
Pubmed
Portugal
Associação Nacional de Doentes Linfáticos (andLINFA)

Affiliated Partners

There are 2 types of affiliated partners:

  1. Associated National Centres (mainly healthcare providers) for those ERNs where an EU Member State is not yet represented by a full member in the respective ERN. It establishes a link with one specific ERN.
  2. A National Coordination Hub which establishes at once a link with more than one Network in which a given Member State is neither represented by a full member nor by an Associated National Centre. National Coordination Hubs may especially represent a useful solution for those Member States with very small populations that need to establish such links with many ERNs at once.

For all documents related to Affiliated Partners see the Board Statement States page here

Associated National Centres

Slovenia
University Medical Centre Ljubljana

Dermatovenereological clinic

Tanja PLANINŠEK RUČIGAJ
Dr. Tanja PLANINŠEK RUČIGAJ
Dermatologist
Pubmed
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