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Home - Working Groups - Medium Sized Arteries (MSA-WG) - Registry
Medium Sized Arteries (MSA-WG)
Introduction Diseases covered
RDWG’s Members
Members Centers
Clinical Decision Support Tools
Patient Pathways Do’s and Don’ts Clinical Practice Guidelines (CPGs) adopted Clinical Expert Consensus Statements Written Clinical Outcome Measures
Registry
Research
Clinical Trials/Observational Studies Research Publications
Training and Education
Pills of Knowledge (PoK) Webinars

Registry

The MSA Registry project will consist of the adaptation of the already existing registry, the RADICO vEDS registry, which has been set up by our partner RADICO, is using RedCap, and has been used by HEGP Hôpital Européen Georges Pompidou in Paris, France. It is already up and running and used by reference and competence centres in France. The necessary modifications of this database to make it FAIR are now underway.

More information on the Registry page here.

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