Chair
Pr. Julie De BACKER
Cardiologist and clinical geneticist
Heritable Thoracic Aortic Diseases (HTAD-WG)
Members
Co-Chair
Pr. Guillaume JONDEAU
Cardiologist
HEALTHCARE PROVIDER (HCP) FULL MEMBERS
Asociacion Española de Afectados por el Sindrome de Marfan (SIMA)
Carmen QUIRÓS PAZ
ePAG Co-Chair
Affiliated Partners
There are 2 types of affiliated partners:
- Associated National Centres (mainly healthcare providers) for those ERNs where an EU Member State is not yet represented by a full member in the respective ERN. It establishes a link with one specific ERN.
- A National Coordination Hub which establishes at once a link with more than one Network in which a given Member State is neither represented by a full member nor by an Associated National Centre. National Coordination Hubs may especially represent a useful solution for those Member States with very small populations that need to establish such links with many ERNs at once.
For all documents related to Affiliated Partners see the Board Statement States page here
Associated National Centres
Medical University Innsbruck
Center for Genetic Aortopathies / Department of Cardiac Surgery
Dr. Julia DUMFARTH
Cardiac Surgeon
National Coordination Hubs
Centre Hospitalier de Luxembourg
Department of Cardiac Surgery
Pr. Klaus KALLENBACH
Cardiac Surgeon