Pr. Julie De BACKER
Cardiologist and clinical geneticist
Communication
Group members
Ghent University Hospital
HTAD European Reference Center, Center for Medical Genetics
AP-HP – Hôpital Bichat-Claude Bernard
CRMR Marfan Syndrome and related disorders
Pr. Guillaume JONDEAU
Cardiologist
Treasure UDECHUKWU
VASCERN Communication and Patient Support Officer
Radboud University Medical Center
Expert center for Hemangioma and Vascular Anomalies (Hecovan)
Dr. Carine VAN DER VLEUTEN
Dermatologist
Associação Nacional de Doentes Linfáticos (andLINFA)
Manuela LOURENÇO MARQUES
ePAG PPL Co-Chair