The VASCERN Pregnancy and Family Planning Working Group (WG) is a transversal WG of VASCERN, coordinated by Professor Julie De Backer (Chair), Professor Guillaume Jondeau (Co-Chair) and Petra Borgards (ePAG representative), that deals with issues specifically related to pregnancy and the diseases of our five Rare Disease Working Groups.
The group meets every three months and liaises with the inter-ERN Transversal Working Group on Pregnancy and Family Planning. The aim is to stimulate research in the field of pregnancy and rare diseases, deliver specific Clinical Practice Guidelines for pregnancy planning and management, develop education and information for patient and healthcare professional and collect European-wide evidence on pregnancy management.

BELGIUM
Ghent University Hospital, Ghent, Belgium
VASCERN HTAD European Reference Centre, Dept of Cardiology and Center for Medical Genetics

Cliniques universitaires Saint-Luc, Brussels, Belgium
VASCERN VASCA European Reference Centre, Center for Vascular Anomalies

University Hospital of Antwerp, Antwerp, Belgium
VASCERN HTAD European Reference Centre, Center of Medical Genetics


DENMARK

Dr. Pernille M TØRRING
Clinical Geneticist

FRANCE
AP-HP, Hôpital Bichat-Claude Bernard, Paris, France
VASCERN HTAD European Reference Centre, CRMR MarfanSyndrome and related disorders, department of cardiology

CHU de Lyon HCL, GH Est-Hôpital Femme Mère Enfant
Lyon, France
VASCERN HHT European Reference Centre, CRMR Rendu-Osler

Dr. Olivier DUPUIS
Obstetrician-Gynecologist
HHT WG
AP-HP, CHU Paris IdF Ouest, HEGP Hôpital Européen Georges Pompidou, Paris, France
VASCERN MSA European Reference Centre, Rare Vascular Diseases Reference Centre (CRMR)


GERMANY

Petra BORGARDS
ePAG advocate for the Pregnancy WG

NETHERLANDS
Radboud university medical center, Nijmegen, Netherlands
VASCERN VASCA European Reference Centre, Expert center for Hemangioma and Vascular Anomalies (Hecovan)


Dr. Carine VAN DER VLEUTEN
Dermatologist
Erasmus Medical Center, Rotterdam, The Netherlands
VASCERN HTAD European Reference Centre, Department of Clinical Genetics and Cardiology


Prof Jolien ROOS-HESSELINK
Cardiologist
Nij Smellinghe hospital, Drachten, The Netherlands
VASCERN PPL European Reference Centre, Expert Center for lymphovascular medecine


Dr. Kirsten VAN DUINEN
Dermatologist
Janine DICKINSON
Dermatologist









