The VASCERN Pregnancy and Family Planning Working Group (WG) is a transversal WG of VASCERN, coordinated by Professor Julie De Backer (Chair), Professor Guillaume Jondeau (Co-Chair) and Petra Borgards (ePAG representative), that deals with issues specifically related to pregnancy and the diseases of our five Rare Disease Working Groups.

The group meets every three months and liaises with the inter-ERN Transversal Working Group on Pregnancy and Family Planning. The aim is to stimulate research in the field of pregnancy and rare diseases, deliver specific Clinical Practice Guidelines for pregnancy planning and management, develop education and information for patient and healthcare professional and collect European-wide evidence on pregnancy management.

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BELGIUM

Ghent University Hospital, Ghent, Belgium

VASCERN HTAD European Reference Centre, Dept of Cardiology and Center for Medical Genetics 

Pregnancy WG Chair

Pr. Julie De BACKER
Cardiologist and clinical geneticist

HTAD-WG Chair

Cliniques universitaires Saint-Luc,  Brussels, Belgium

VASCERN VASCA European Reference Centre, Center for Vascular Anomalies

Prof. Laurence M. BOON
Plastic and Microsurgery Surgeon

Corinne HUBINONT
Obstetrician-Gynecologist

University Hospital of Antwerp, Antwerp, Belgium

VASCERN HTAD European Reference Centre, Center of Medical Genetics 

Pr. Bart LOEYS
Clinical cardiogeneticist

Dr. Aline VERSTRAETEN
Clinical geneticist

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DENMARK

Dr. Pernille M TØRRING
Clinical Geneticist

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FRANCE

AP-HPHôpital Bichat-Claude Bernard, Paris, France

VASCERN HTAD European Reference Centre, CRMR MarfanSyndrome and related disorders, department of cardiology

Pregnancy WG Co-Chair

Prof. Guillaume JONDEAU
Cardiologist, VASCERN Coordinator, HTAD-WG Co-Chair

 

CHU de Lyon HCL, GH Est-Hôpital Femme Mère Enfant
Lyon, France

VASCERN HHT European Reference Centre, CRMR Rendu-Osler

Dr. Olivier DUPUIS
Obstetrician-Gynecologist

HHT WG

AP-HP, CHU Paris IdF Ouest, HEGP Hôpital Européen Georges Pompidou, Paris, France

VASCERN MSA European Reference Centre, Rare Vascular Diseases Reference Centre (CRMR)

Dr. Michael FRANK
Consultant Cardiologist

MSA WG Chair

Alexandra BENACHI
Obstetrician-Gynecologist

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GERMANY

Petra BORGARDS
ePAG advocate for the Pregnancy WG

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NETHERLANDS

Radboud university medical center, Nijmegen, Netherlands

VASCERN VASCA European Reference Centre, Expert center for Hemangioma and Vascular Anomalies (Hecovan)

Dr. Carine VAN DER VLEUTEN
Dermatologist

Erasmus Medical Center, Rotterdam, The Netherlands

VASCERN HTAD European Reference Centre, Department of Clinical Genetics and Cardiology

Nij Smellinghe hospital, Drachten, The Netherlands

VASCERN PPL European Reference Centre, Expert Center for lymphovascular medecine

Dr. Kirsten VAN DUINEN
Dermatologist

Janine DICKINSON
Dermatologist

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