Communication WG

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BELGIUM

Michèle DE HOSSON (team member)
Pr. Julie De BACKER (HCP representative)
Ghent University Hospital
Ghent, Belgium

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FRANCE

Marine HURARD
VASCern Project Manager
VASCern – Rare Multisystemic Vascular Diseases
AP-HP Hôpital Bichat
Paris, France

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ITALY

EPAG

Rafaella RESTAINO
Fondazione Alessandra Bisceglia W ALE Onlus

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NETHERLANDS

Dr. Hans-Jurgen MAGER
Dept. of Pulmonology.
Dutch HHT expertise center
St. Antonius Hospital
Nieuwegein, Netherlands

Patient representative

Ange VAN DER VELDEN
LGD Alliance Europe (LGD Alliance Nederland)
Member (Co-founder/secretary)

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SPAIN

EPAG

Luisa BOTELLA
Asociación HHT España