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Rare Diseases Registries Workshop


The European Commission organises a Workshop on Rare Diseases Registries in Madrid (March 21-22nd), on the dissemination of the 2008-2015 Health Programme results. This is organized in cooperation with the Centre for Biomedical Network Research on Rare Diseases (CIBERER), Instituto de Salud Carlos III – Spanish Ministry of Economy, Industry and Competitiveness. The event will disseminate results of the EU Health Programme co-funded conducted projects and Joint Actions on Registries.

The future European platform on Rare Diseases Registration, as well as Registries through the European Reference Networks will be tackled.

Registration until March 20th here

Agenda here

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