eHealth Week 2016 is organised by the Dutch Ministry of Health as part of the Dutch Presidency of the Council of the European Union, the European Commission and HIMSS Europe. This year’s educational programme will focus on three main themes: Empowering People, Trust & Standards and Social Innovation & Transition. More…
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The 4th, and final, GenTAC Thoracic Aortic Disease Summit will be held September 22-23, 2016 at the Washington Capital Hilton in Washington, DC. The previous 3 Thoracic Aortic Disease Summits brought together prominent clinical, translational and basic scientists who presented research on disease etiology, pathogenesis, progression and treatment. This meeting…
This congress will address topics such as : high-throughput methods and data analysis, functional imaging in multiomics approaches, application of PM in clinical decision making and translation of PM into clinical trials in state of the art lectures, hands on workshops and interactive discussion rounds. More information here
ERN Coordinators applicants are going to meet in Brussels on May, 25th with the European Commission. During this meeting, the status of ERN applications, progresses and difficulties will be discussed.
The two events intend to promote the establishment of Findable, Accessible, Interoperable and Reusable (FAIR) Rare Disease (RD) registries in compliance with the IRDiRC and EU Recommendations and to support cooperation among different registry stakeholders and coordination with registries that are developed within National Plans in the EU in the…
The International Symposium on Ehlers-Danlos Syndrome will take place in New York between May 3–6, 2016. All information can be found here The Vascular Committee includes several of our ERN Members, who are dealing with vascular Ehlers-Danlos Syndrome (vEDS) in the framework of our Medium Size Arteries Diseases Working Group :…
The European Programme for Research and Innovation, Horizon 2020, cofunds research projects in the field of Rare Diseases (call H2020 2016-2017) : New therapies for Rare Diseases and Diagnostic characterisation of rare diseases. The Norvegian Council for Research, together with the French Institute of Oslo organise this event in order to…
The European Conference on Rare Diseases and Orphan Products is organised by EURORDIS – the association which represents the Voice of Patient Organisations throughout Europe – with the support of the European Commission. It will be an opportunity to meet all European Partners and stakeholders involved in Rare Diseases, thus fostering…
The ERN Call for proposal 2016 was released on March, 16th, with a deadline on June, 21st. This first ERN Info Day aims to gather all stakeholders interested and currently drafting ERN proposals to explain the Call as well as to answer all questions.
The European Commission, DG Research and Innovation, organise a conference on Personalised Medicine. This two days event aim to foster research on Health new technologies, innovation, sustainable health. More information and inscription on the European Commission dedicated page here


