How to get involved and support Rare Diseases Day 2017: here All information available here
Blog Archives
The aim of the call is to enable scientists in different countries to build an effective collaboration on a common interdisciplinary research project based on complementarities and sharing of expertise, with a clear translational research approach. Projects shall involve a group of rare diseases or a single rare disease following…
The European Commission (DG Health) has launched a new call for proposals for a pilot project in the area of Rare Diseases. This will be founded by the European 3rd Health Programme. PP-2-1-2016 – Pilot project — Establishing a Registry of Rare Congenital Malformations (as part of the Rare Diseases Registry),…
The EPF conference “Patient and family empowerment for better patient safety” will explore these issues, including: •The ethics of patient involvement in safety: taking responsibility or being burdened with responsibility? •Challenges for patient empowerment and involvement in acute care settings •Challenges for healthcare professionals: is a fundamental culture change needed?…
The aim of the conference is to disseminate the findings from the RARE-Bestpractices project and offer a forum for discussing with relevant stakeholders how this work could be taken into account in delivering better health decision making and health policies for rare diseases. More information and registration here
The objective of the consultation is to collect information from a wide audience on different aspects of Horizon 2020 implementation. The results of this consultation will feed into the report on the interim evaluation of Horizon 2020, will help the European Commission to improve the implementation of Horizon 2020 and will…
All information on the calls for Innovative Training Networks available here Deadline: January 10th 2017
All information and registration here
Conference on cross-border healthcare Directive “Towards amplified awareness of EU rights to cross-border care” – European Commission The conference aims mainly at: Improving information provision to enable patients to cross-border healthcare; Fostering better coordination between NCPs; Amplifying NCP cooperation with patient organisations, healthcare providers and healthcare insurers for the benefit…
All information and registration here