A special event on Marfan Syndrome and Loeys-Dietz is organised by the University of Antwerp and Bindweefsel.be. More information here
Blog Archives
Prof Guillaume Jondeau will present VASCERN at the 20th Turin Meeting on Rare Diseases (ERN Roundtable). The European Commission as well as 5 other ERNs will be there and make presentations!
Every 2 years, ISL Conference welcomes 1.000 doctors and therapy professionals from all over the world, to benefit from new research and innovate solutions to the many issues faced by health practitioners who treat people with lymphatic dysfunction. New deadline for abstract submission : 31st March 2017 More information and registration…
Aim: increase knowledge on rare diseases and develop clinical research Eligibility: only applicants members of approved ERNs are eligible to be co-funded. Scope: from at least 3 countries Description: The activities to be carried out concern the creation of 3-4 new registries on rare diseases. These registries should constitute key…
The European Commission (DG Health) organises the 3rd European Reference Networks Conference on March, 9-10th in Vilnius, Lithuania. The ERN Conference will focus on the presentation of the newly 24 approved European Reference Networks, and will be the official launch and start of ERNs (see here the list of approved ERNs).…
“The event is the first of its kind to be organised in Geneva and will gather international experts in the fields of public health, human rights, epidemiology, scientific research and patient advocacy to discuss why and how rare diseases should be included in the global health agenda.” All information and…
Save the date! All information about the meeting and the patient fellowships are available here
Abstract submission here until February 28th This International event will gather world’s leading HHT experts in both basic research as well as clinical practice, including our VASCern HHT-WG Chairs and Members. Hans Jurgen-Mager, MD, PhD, HCP Representative and Member of the VASCern HHT-WG is also Co-Chair of the Cure-HHT Organising Committee for…
Conference Call meeting of the VASCern ePAG representatives, organised in cooperation with EURORDIS.
During this meetingn, the European Commission will inform ministers on the European reference networks. More information here


