Blog Archives
Organised by Rare Diseases Ireland. Info and registration here
VASCERN Vascular Anomalies (VASCA) Working Group Members first meeting as an ERN group
More information and registration here
The European Commission organises a Workshop on Rare Diseases Registries in Madrid (March 21-22nd), on the dissemination of the 2008-2015 Health Programme results. This is organized in cooperation with the Centre for Biomedical Network Research on Rare Diseases (CIBERER), Instituto de Salud Carlos III – Spanish Ministry of Economy, Industry and…
Watch the video for the World Lymphedema Day!
The European Commission organises a ERN journalist study visit at the University Hospital of Leuven. Prof Guillaume Jondeau, VASCERN Network Coordinator and Dr Sarah Thomis, Univ. Hospital of Leuven HCP Representative, Member of the Pediatric and Primary Lymphedema WG (PPL-WG) will present VASCERN, together with a PPL Patient representative (Be-Lymph).
This high-level workshop is organised by the Maltese Presidency of the EU Council of the European Union at the Grand Master’s Palace , in parallel to the informal meeting of EU Ministers of Health. The Maltese Presidency has established Rare Diseases as one of its core priorities. European Reference Networks…


