VASCERN MSA-WG Monthly “virtual” meeting takes place every 4th Monday of the month at 5.30pm (GMT+1). The MSA-WG (Medium Sized Arteries – Vascular Ehlers Danlos) will discuss during these meetings all actions to be implemented by VASCERN. Once the Clinical Case Management Platform will be available, the experts will be…
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VASCERN VASCA-WG Monthly “virtual” meeting takes place every 2nd Monday of the month at 7pm (GMT+1). The VASCA-WG (Vascular Anomalies) will discuss during these meetings all actions to be implemented by VASCERN. Once the Clinical Case Management Platform will be available, the experts will be able to discuss and share…
VASCERN HTAD-WG Monthly “virtual” meeting takes place every 4th Monday of the month at 5pm (GMT+1). The HTAD-WG (Heritable Thoratic Aortic Diseases) will discuss during these meetings all actions to be implemented by VASCERN. Once the Clinical Case Management Platform will be available, the experts will be able to discuss…
VASCERN eHealth-WG monthly “virtual” meeting takes place every first Tuesday of the month at 5.30pm (GMT+1). The eHealth-WG works on all the transversal eHealth topics. The WG is especially in charge of the development of the VASCERN Mobile Application, which will facilitate cross-border healthcare and pathways throughout Europe in rare…
VASCERN ePAG (Patient Group) representatives are meeting every first Tuesday of the month at 10am (GMT+1) in order to work together, share views and be involved in all VASCERN actions.
The VASCERN Ethics-WG first virtual meeting will take place on June 14th.
In the framework of the Cure HTT 12th International Scientific Conference held in Dubrovnik, Croatia on June 8-11th, our VASCERN HHT-WG Members will have a first VASCERN HHT-WG face-to-face meeting.
This workshop is organised by the French Ministry of Research.
On June 20th & 21th, there will be a Joint meeting of the ERN Board of Member States (BoMS) and the ERN Coordinator’s Group (ECG). Issues such as: call for new ERN members joining existing networks, affiliated partners, monitoring of ERNs and relationships between ERNs and Industry will be tackled.…
VASCERN will be represented at this workshop. “ERNs need to be able to demonstrate their impact across a broad range of fields and activities, which requires carefully-selected indicators and at the same time a monitoring system including Key Performance Indicators should be set up to follow up the activity and…


