Rare Disease Day 2021

Rare Disease Day takes place on the last day of February each year. This year it will take place on Sunday February 28th, 2021! The main objective of this international event is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. More information here

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EURORDIS Black Pearl Awards

The EURORDIS Black Pearl Awards celebrate the inspirational qualities of people living with a rare disease along with those who go that extra mile to make a difference to their lives. The black pearl symbolises these unique individuals, organisations and companies who demonstrate an incredible combination of hard work and…

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IRDiRC Conference and RE(ACT) Congress

The online IRDiRC Conference & RE(ACT) Congress will take place online from 13-15 January, 2020. Hosted by The BLACKSWAN FOUNDATION, IRDRIC And EJP-RD, this event brings together scientific leaders, patients and policy makers to advance research on rare diseases. Register here To see the agenda: click here To see the…

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