The VASCERN MSA-WG Monthly Meeting will be taking place on January 11th, 2021 at 5 pm (Paris time).
Blog Archives
The VASCERN HTAD-WG Monthly Meeting will take place on January 4th, 2021 at 5 pm (Paris time).
The monthly meeting of this interERN Working Group will take place online on January 18th, 2021 at 11:30 AM (CET). Romain Alderweireldt (VASCERN Ethical and Legal WG Chair) will be representing VASCERN.
Rare Disease Day takes place on the last day of February each year. This year it will take place on Sunday February 28th, 2021! The main objective of this international event is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. More information here
The Knowledge Generation WG Meeting will take place on Monday 11th January 2021 from 2 PM to 3:30 PM (CET). Natasha Barr (VASCERN Project Officer) will be in attendance.
The VASCERN PPL-WG Monthly Meeting will take place on December 21st, 2020 at 5:30 pm (Paris time).
The VASCERN VASCA-WG Monthly Meeting will take place on December 16th, 2020 at 3:45 pm (Paris time).
The VASCERN MSA-WG Monthly Meeting will be taking place on December 14th, 2020 at 5 pm (Paris time).
The EURORDIS Black Pearl Awards celebrate the inspirational qualities of people living with a rare disease along with those who go that extra mile to make a difference to their lives. The black pearl symbolises these unique individuals, organisations and companies who demonstrate an incredible combination of hard work and…
The online IRDiRC Conference & RE(ACT) Congress will take place online from 13-15 January, 2020. Hosted by The BLACKSWAN FOUNDATION, IRDRIC And EJP-RD, this event brings together scientific leaders, patients and policy makers to advance research on rare diseases. Register here To see the agenda: click here To see the…


