Global HHT Awareness Day

June is Global Hereditary Hemorrhagic Telangiectasia (HHT) Awareness month and Global HHT Awareness Day takes place on June 23rd! This international event is the occasion to raise awareness for this rare vascular disease. We encourage you to see what the HHT patient organisations of our European Patient Advocacy Group (ePAG)…

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ERN Workshop “Clinical Research: The Basics & Beyond Workshop In Clinical Epidemiological Research For ERNs”

In the context of EJP RD’s ERN Workshops, a face-to-face workshop on clinical epidemiological research for ERNs titled “Clinical Research: The Basics & Beyond” (consisting of presentations by experts in the field of epidemiology and a feedback session on the research projects of participants) is being organised by Prof. Olaf Dekkers and Prof. Frits Rosendaal of the Leiden University Medical Center. The in-person…

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