European Days of the French Society of Cardiology

The European Days of the French Society of Cardiology will be held at the Palais des Congrès in Paris from January 15-18th, 2020. Both Professor Guillaume Jondeau (VASCERN coordinator) and Professor Julie De Backer (Heritable Thoracic Aortic Diseases (HTAD) Working Group Chair) will be speaking at this event about aortic…

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EJP-RD Networking Support Scheme

The Call for the Research – European Joint Programme on Rare Diseases (EJP RD) Networking Support Scheme (NSS) is now open! The scheme will provide financial support to applicants for fostering organization of workshops or conferences for new research networks or existing/expanding research networks to strengthen collaborations and to enable…

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February is Marfan Awareness Month!

February is Marfan Awareness Month, a time for all of us in the community to escalate our efforts to increase Marfan awareness. This year, the Marfan Foundation hopes you will join them in the #MarfanVictoryChallenge. “The idea is to spread the word about Marfan syndrome – through social media; through…

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Rare Disease Day 2020

The 13th edition of the Rare Disease Day will be held on February 29th, 2020 worldwide! For this international day initiated by EURORDIS – European Rare Diseases Organisation, the French networks for rare diseases (including FAVA-multi) will be reaching out to the general public by organising various events to raise…

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