The European Days of the French Society of Cardiology will be held at the Palais des Congrès in Paris from January 15-18th, 2020. Both Professor Guillaume Jondeau (VASCERN coordinator) and Professor Julie De Backer (Heritable Thoracic Aortic Diseases (HTAD) Working Group Chair) will be speaking at this event about aortic…
Blog Archives
The European Society of Cardiology (ESC) Congress 2020 will take place online from August 29th to September 1st, 2020. For more information visit the event’s website here.
The Call for the Research – European Joint Programme on Rare Diseases (EJP RD) Networking Support Scheme (NSS) is now open! The scheme will provide financial support to applicants for fostering organization of workshops or conferences for new research networks or existing/expanding research networks to strengthen collaborations and to enable…
The 23rd Conference on Immune Pathologies and Rare Diseases, organised by C.M.I.D. (Centro di Ricerche di Immunopatologia e Documentazione su Malattie Rare) will take place from January 22-25th, 2020 in Torino Italy. Pernille Henriksen, ePAG co-Chair for the Pediatric and Primary Lymphedema (PPL-WG), and Elena Matta (ePAG patient advocate for…
February is Marfan Awareness Month, a time for all of us in the community to escalate our efforts to increase Marfan awareness. This year, the Marfan Foundation hopes you will join them in the #MarfanVictoryChallenge. “The idea is to spread the word about Marfan syndrome – through social media; through…
The 13th edition of the Rare Disease Day will be held on February 29th, 2020 worldwide! For this international day initiated by EURORDIS – European Rare Diseases Organisation, the French networks for rare diseases (including FAVA-multi) will be reaching out to the general public by organising various events to raise…
The VASCERN PPL-WG Monthly Meeting will take place on March 16th, 2020 from 5:30 pm to 6:30 pm (Paris time).
The VASCERN ePAG Monthly Meeting will be taking place on March 10th, 2020 from 10 am to 11:30 am (Paris time).
The VASCERN MSA-WG Monthly Meeting will be taking place on March 4th, 2020 at 6 pm (Paris time).
The VASCERN VASCA-WG Monthly Meeting will be taking place on February 19th, 2020 from 3:45 pm to 5 pm (Paris time).


